“Doing Infinity better today. Able to get in and out of cars, bathroom stuff stairs and walking. Pain has beginning to lessen. I had a family session today so my mom and my husband know what to help me with and I am excited about going home and getting out of the hospital!!! Looking forward to Monday when I leave the hospital.
That’s my update😍”
U GUYS GOT ME THROUGH SOME OF THE HARDEST DAYS OF MY LIFE.I DONT HAVE WORDS TO BEGIN TO THANK YOU WITH THE THANKS THAT YOU DESERVE!! I just want you all to know that every day that Eric texted me about what was happening for me on FUD was an inspiration to push through the pain and heal myself. It was and still is an excruciating journey. The work and effort I had to put in every day was immeasurable. I exercised for 3 hours at a time, twice a day. I did PT in the mornings and then OT in the afternoons. I was scared, I felt impotent, I wanted to be a superstar but I couldn’t (very upsetting and a hard challenge to battle), I pushed myself to my limits every day. (Of course I had to reduce my basal to 65%, UGH, but it worked, thank God.) I did as instructed and didnt mess around bc I was sooooo afraid of messing up the new rocket titanium in my spine. (basically, they removed the old, bad spine, and replaced it with a new spine) SEE THE PICS ABOVE…which are only of my lumbar spine (I have an entirely different set of titanium rods and screws and cages and bone marrow on the upper spine.)
I’m too tired to write about any more of my experience, but you know me well by now, and tomorrow I promise to write some more about my experience. I hope that this helps ANYONE who is facing spinal surgery and is frightened. Mine was a 9 hour surgery and 3 weeks in the hospital, and God knows how long it will be before my life returns to “normal” BUT it can be done!!! and you can do it as a Diabetic. We’re unstoppable !
Pssshhh. You ARE a superstar. Just pushing yourself to your limits every day after going through what you went through is an amazing accomplishment. Kudos to your continued progress!
Wow, @daisymae, Welcome Home!! Man, you are an inspiration to us all! You know you have always been to me, ever since I got hooked on your swimming thread!! The images Eric posted look amazing. You are definitely our super hero here on FUD with your bionic spine!! I know you still have more PT to get through and I hope and pray it becomes easier and less painful each day!
Yup! More PT and OT (Ocupational Therapy) to go through. The Visiting Nurse Service is coming today (UGH)
But Back to the situation of dealing with all the D stuff:
While in the hospital, I had to change ALL OF MY BASAL RATES.
IT WAS A REAL PAIN IN THE BUT. But I’m certain some of you are familiar standerd hospital food :ALL starch even for the diabetic (and btw, my room mate was a type 2) So basal rates up pretty high. about an entire 3th of normal just to accommodate the starches(.But I have to say that the food was phenomenal.)
So every day, bc my OCD is always at work, I had two turkey sandwiches layered with mayo. dressing and a pudding 2 times a day with two Garden salads layered in ranch dressing and a pudding and for dinner the exact same . And for breakfast I ate two bowls of oatmeal.some serious carbs, right?!
anyway, my husband is now my slave boy; has to assist me with everything Kinda cool, right??
I want to write more now, but I am too out of it from my meds, I cant. I am going to lie down and take a rest.
Definitely!! Good time to take advantage of going off your strict diet!!! Some comfort food always helps!!!
And I know he is up to the job!!! He is so devoted to you!!!
Definitely take a rest, you deserve it and you need your strength for all of that PT and OT!! Don’t worry about having to update us. We are all waiting patiently for your improvements!!!
Thank you so much. I appreciate all of your incredible patience with me. Everything is slow going. I dont know how long I will have to wear the brace nor do I know how long I will need all this equipment to manage my moving around the house and trying to walk down the street… But I’m trying to do everything and to push myself to my limits. I’ve been able to get in and out of bed by myself now. I can wash my face (but I cant wash my hair without assistance yet). I can get in the fridge (Thank God ), I can make my own meals…and a few other things. But I can’t turn my head or my body on a twisting angle (which is hard to not due bc I am used to doing it so frequently all the time without realizing .)
I wan to express my emense gratitude to those of y9ou who sent me the most generous gifts while I was healing in the hospital. I was blown away by you compassion, your encouragement , and your generosity. you sent me ALL the things I love and the were so unexpected and such a wonderful
surprise that I am over whelmed by your many gifts.
Thank you:
Trying
Claude Daye
TiaG
Tapestry
Chris
bkh
Marie
Elver
Sbee
Jim26
Mariethm
John58
Marie
CatLady
T1Allison
TiaG
JessicaD
Beacer
Sam
Millz
Carol
Trying
John58
and of course Eric for making this all possible. I am overwhelmed !!!
Thank u thank u thank u thank you!!
There are many ways to identify a tree. You can look at the branches or leaves or trunk of the tree. But the easiest way is to look at the fruit that it bears.
This is the fruit from your tree.
There was an overwhelming response from the people here. It is a testament of course to the love and incredible generosity of the members of FUD. But it is also a testament to who you are.
The love and respect and admiration from everyone here is fruit from your tree. That is what you have grown, and it says everything about who you are.
Well not Monday, but definitely ASAP!!! (trying to stay KETO to get ride of the 10 pounds I gained while eating my guts out during my hospital stay, bc as I already mentioned. I pigged my brains out during my time there )
So my blood pressure is always rather on the low side (90/60) but in the hospital it was particularly low:
65/40, and similar at other times. Sometimes I dont notice it, but other times I get very dizzy and I fall. I’ve fallen more than several times getting out of bed. I get very light headed , and then bam, I crash to the floor.
well, this morning I was trying to get out of my bed, I got the walker as close to me as possible to steady myself, but I kinda blacked out and fell to the ground. I’m not certain how I fell, Did I fall forward, onto my side, on my back? not a clue. All I know is that I was in pain afterwards, and my husband is scared to death.
We are calling the surgeon as soon as their office opens (probably need to have some more X-rays taken) but of course my biggest fear is that I ruined something in my spine and messed up the surgery and will have to go back to the hospital all over again.
Cant give you anymore info yet, but I will keep you posted.
gentle hugs are going your way @daisymae! Oh my! I hope you’re okay and didn’t mess anything up. Can you rent one of those lift chairs for a month or two, to sleep in? They help you stand up, sit/lay down. It’s not a bed, but it might be a help until you’re a little more steady in the blood pressure department.
Very sorry to hear that! Please let us know what you find out from the surgeon.
Very low BP when you first wake up and lift your head is somewhat common. It’s called orthostatic hypotension. And spending a lot of time in bed (which you have obviously done the past several weeks) can make it worse. You have to be very careful when you first wake up. And it helps to make sure you are well-hydrated. That will help to raise your blood pressure a little bit.
That must have been pretty nerve wracking to fall like that! Crossed fingers and prayers for you…hoping your inner toughness and attitude will carry you through the ups and downs of healing and regaining strength.
Oh dear DM, hoping that you’ve reached the surgeon and hoping for the best. This sounds so frustrating, but also something that was out of your control. You will get it figured out and will be pushing forward – I am sending you the most positive thoughts and a super gentle hug - xoxo - Jessica
Luckily, I did reach the surgeon, and he asked a series of questions. like do you feel weakness in you legs or any unusual pain that is unfamiliar to you since you were before…etc. And bc I didnt have any problems , they said that it is most likely that there was nothing wrong and I should not worry. (Phew.) But its still so terribly painful, that I cant stand it. I am looking forward to the weeks of healing and recouping from the pain.
Wow, DM, that was scary! I’m glad you heard back from the surgeon and that he thinks you are okay, despite, of course, the ongoing pain and recovery. Phew! Maybe have your husband help when first getting out of bed. We don’t want you to fall again, and I know low blood pressure can come on suddenly. I hope the PT and OT today helped and that it begins to be less painful. Sending hugs and prayers.
Trying, oh my dearest husband, he has been such a wonderful help to me. Getting up around 4 times during the night bc I have to P, and I require his aid just to get to the bathroom. He’s exhausted (to put it mildly) I do have a walker and a reacher, which helps me get around the house, but he is still afraid of me falling so he is awake and follows me everywhere I go so I dont fall.( despite all of the OT and PT I’ve had.)
My blood pressure was really very low when I woke up this morning, so he woke up to help me to get to the bathroom. He’s bk sleeping now.( I do hope he is able to get some very much deserved rest.)
To keep u thoroughly updated, I have had to tweak my basal rates many times because I have been monitoring it and I need to make some!)**
I was totally pigging out in the hospital eating tons of carbs (cause I figured I totally deserved it (which I thought was a great attitude.) But now that I’m bk at home I have to re-tweak it to suit my home needs. (slowly not surely.) I am spiking during the Dawn Effect which I didn’t have in the hospital, so I’ve had to raise my. 6am basal quite high (.8 u/h) down to .325 u/h during the day and early evening but then raise it again to 1 u/h as bedtime approaches to .875 for the evening… Also yesterday, I was so stoned from my medication, that I completely forgot how to fill my pump. Its took about 45 minutes just to remember. And my husband was getting really frustrated (while I was merely stoned and completely at wits end. ( he has very little patience for nearly everything is that isn’t going his way or according to plan ) And oh, btw, most things now that I am home frustrate him and very little goes according to plan anyway
I saw the PT And OT that will b coming to my house 3 days a week. One of them was really really creepy and I am going to request that I see someone else, but the other one was really cool and on top of things, so he was alright with me. I havent met the home heath care worker to find out what the scheduall is for that; its supposed to b, also, three days a week.
so thats the latests and I will continue to keep u informed.