I’ve been home 6 days and have been experimenting with reducing carbs and insulin. My TDD has been quite high for the last month with my GMI for the last 30 days is up a full point. My weight was the same Sunday as before surgery but I dropped about 4 lbs since then.
I’m not sure how to slow/stop the weight loss without poor BG management and lots of insulin.
The other concern is I’m lower energy since returning home. I’m getting stuff done, but have only done one walk since returning home, Monday, iirc.
Welcome home! You’ve been through a lot. Can you let yourself take baby steps on the food / energy / workout / blood sugar mgmt fronts? Keep on keeping yourself healthy and slowly bring the other things back to where you want them? I know, much easier said than done. I continue to do a small cheers to you each time I’m on my bike. You’ll be back there soon. xo
@CarlosLuis Glad to hear you’re home! I presume the stress of travel, returning home, and reintegrating with the menagerie could be the impetus for the weight issue and higher BGs/TDD? Perhaps give it a bit of time and address after a few days if it doesn’t improve? Even with the two items, seems you’ve done very well for yourself!
I saw the surgeon/urologist today and got great news.
The ctDNA (Signatura) test that sequences the DNA of a tumor and looks for traces of that in the bloodstream. It takes about a month- all points negative, rah rah rah!!!
I am cleared to exercise, plan to do a short ride with the group on Saturday.
Nothing to do with today’s meeting, my weight is stabilizing even though insulin and food are reduced and my TIR is improving.
This is all so wonderful to hear! Can’t wait to read about Saturday’s ride (unless we hear you cheering first, all the way up in Massachusetts!!!)! xoxo
I haven’t posted an update in a while. I’m doing great and getting some exercise with my personal trainer. We modified the workouts to limit problems with the port cannula. I will be having immunotherapy for a year so the port needs to stay in working order.
I’ve been stationary cycling and have ridden once on my new gravel bike. I.need to get a bag and supply it with necessities.Also did 2 road group rides, the first was 10 miles and yesterday did 15. My fitness and form are improving.
Here’s my early birthday present
Great to hear this update and glad that the strength is coming back. Hoping you can keep getting back into the outdoor cycling routine! Indoor spin is fine but very, err, hamsterlike.
Well I thought that I really had nothing new to post here since chemo and surgery are done and immunotherapy doesn’t seem to affect BG.
But I’ve been experiencing roller coaster BGs, that are making it difficult to exercise. I found that there are problems called short bowel syndrome, but in those losing half of the small intestine. They only took about 7” of mine.
Then I found a study on using part of the small intestine as a urine conduit of NeoBladder. This makes sense, glucose in the urine can pass through the conduit into the bloodstream.
I take an SGLT2 inhibitor which lowers the kidneys glucose threshold. This results in higher levels of glucose which can renter the bloodstream.
I see a nephrologist in 2 weeks and my endo in May. We will explore changing to Kerendia which protects kidney function and the heart, but does not increase urine glucose.
I need to make sure my drug benefit covers Kerendia because it’s fairly new and pricey.
Just checked Express Scripts- no home delivery on Kerendia. This is funny to me, $60 for 30 days, $186 for 90 days. That’s $6 more, who are they think they are fooling?
@CarlosLuis My wife and I always get a kick out of the stores that charge more for the larger package of consumables; it’s like, “Well, if you’re not going to let us profit from you more regularly, we’ll just up the price!” We’ve even seen it at the likes of Costco…you know, the bulk store savings store!
Many years ago when a pound of Folgers was $0.99, a 3 pound can was $3.60. Curse this memory of mine that remembers prices from 1970s and earlier. oh and 5 pounds of sugar is 4 pounds, and a pound can of coffee is 12 OZ
oh and 5 pounds of sugar is 4 pounds, and a pound can of coffee is 12 OZ 