Yeah I’ve seen that but mine is turned off—yet they had it
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Is there no clinic at all that has access to your data?
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Well apparently at least one does… it looks like when you generate a sharing code you have several duration options to chose up to 12 months… so all that I can think of is I must have done some extended period of time last time I agreed to share data without realizing it
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@Sam, maybe you can start seeing my endo via Telehealth! I promise you that you could email him a picture of a Denny’s placemat and he would never know the difference.
I don’t even think my endo’s office knows how to access Dexcom data, pump data or bg meter data.
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That’s crazy… begs the question— why have an endo at all? My wife’s an orthopedic nurse practitioner who only sees elbows to fingertips and I guarantee she could do better than that
Then again as long as they are good at filling your prescriptions and doing your routine labs and sending you to specialists as needed
I guess that is really all that matters… however any primary care provider can do those things too
I see a nurse practitioner who only see his diabetes patients and has built their whole practice on it and has been doing it for many years and she is excellent at it… I would just rather spend our appointment time discussing my concerns rather than her concerns with my Dexcom trace
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You know, after I got fired as a patient in the beginning of my second trimester from my crazy temporary endo (mine retired in my first trimester) for bolusing more for potatoes than she told me to…I want the least up-in-my-business endo I can find.
And let’s be honest…after working with female endos, male endos, female T1D nurse practitioners, female T1D diabetes educator consultants, male T1D diabetes educator consultants…I have yet to find ANYONE who will treat my female endocrinology in its totality. I continue to know more about it than any of them do. And they ruined my A1C for a minimum of three years while I followed their “expert” advice. That’s when I realized that I alone was as close to an expert that I was actually gonna get.
My GP won’t touch diabetes labs or prescriptions. My endo won’t touch anything other than paperwork. My OB/GYN continues to encourage me to go back on NuvaRing despite its cause and effect relationship with my two severe complex migraines that presented as strokes…and its questionable safety record in general plus specifically for T1D’s and stroke risk.
I’m the best I have. 
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You are certainly the best patient advocate for your care that I know of. Doctors have a good amount of specialized information, but once you venture outside of that, you are going to know more about you.
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Seems like people have identified a few key factors that determine if you “should” share: a) based on your history, what’s the likelihood that you’d experience a hypo bad and fast enough that it would incapacitate you to deal with it; b) is there somebody in your life who could do something helpful (ie. track you down quickly and do something sensible) and c) is said person also respectful of issues with boundaries and not driving you insane. It seems like if you tend toward scary hypos, and have a perfect wing man who gives you adequate space, you would probably share. That said, some people ski black diamonds and other don’t go over the speed limit – there’s a personal balance of autonomy and risk involved. I can’t imagine there is one decision that’s right for everybody.
For my 16 yo we have our alerts on, but don’t react or track him down during the day unless he hits the “fours” 400 or 40 for a prolonged time. We wouldn’t do even that if he didn’t sometimes get distracted and not deal with them. At night his alarms get turned off and parents wake him for lows so he can get some sleep. Our deal is that senior year, this stops so he can learn to wake up to the alarms before living alone. I figure this is the only time in his life I can relieve him of that responsibility, so I’m glad to.
And I’m working with his dad on the “good manners” part so the data door doesn’t get slammed when he turns 18 if he still needs our help 
. No one should assume that another person will share sensitive info, of any sort, even if they behave like a jerk in reacting to said info. In my mind it’s my responsibility to act in a helpful enough way that he sees a point in sharing. That should go for MDs too!!
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