How to share looping data with doctors

I use and omnipod and dexcom g6 and will start looping soon. How do I share all of the relevant info with my doctor? Glooko (my doctor does use this currently) for the G6 data and something else for the omnipod data? To my surprise, I haven’t been able to find any answers for this anywhere online.

Glooko lists Omnipod as one of the compatible devices, so you should be able to use that. Tidepool.org also supports both devices.

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Looping would not involve the omnipod pdm though. The phone/ipod would hold the programs that perform the function of the omnipod pdm. I believe glooko pulls info directly from the pdm unless I’m mistaken. Perhaps I didn’t give enough info. I’m currently on the old omnipod so I can’t use tidepool when it becomes available. I will either be going the route of Loop (from loopkit.github) or Omnipy. I cannot find anything on those sites, or anywhere else online, regarding getting the info from those programs into the hands of your doctor though.

@Hobbzz You could setup Nightscout which provides great reports which you could share/print for dr.

Also, if you install Tidepool Mobile app, Loop data (via Apple Health) will be sent to your Tidepool web account which you could share/print for your dr.

https://loopkit.github.io/loopdocs/build/step11/#step-11-make-plans-for-your-loop-data
https://loopkit.github.io/loopdocs/nightscout/overview/
https://loopkit.github.io/loopdocs/operation/loop-settings/services/#nightscout

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Awesome. Thanks for the help folks!

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I print out 2 of the Nightscout reports for my Endo and that worked well for my first appointment after I started Looping.

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Hi all – reviving this older thread to update conversation on looping and sharing CGM and insulin delivery data with endos/healthcare professionals. My endo’s office uses Glooko, but I’m not sure that loop will tie into it?

I am very, very not technical and have had amazing support from @Eric in getting started with looping and absolutely love it. I am using mostly closed-loop and my BS control has been incredible, but I would like to be able to take a step back and look at overarching patterns, including any consistent changes/tweaks that loop is making so I can make appropriate basal changes. Eric mentioned @ClaudnDaye might have insight? Or would you have any thoughts @Millz or @Trying ? Thanks! Jessica (PS - ideally I would like to share with my endo’s office through Glooko as well, but if not I would like to be able to show her meaningful information if possible…)

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I share Dexcom Clarity and NS data with the Endo. Loop settings are viewable in NS and you can also see reports of trends in many ways. You can set up an API secret and share the data with the Endo. There is info on setting up an API secret for sharing/ viewing data on the Looped group.

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@JessicaD,
I don’t use Glooko myself, but my understanding is that while Dexcom can integrate with Glooko, the Loop stuff does not directly integrate with Glooko.

(Please, correct me for anything I am saying incorrectly here, because this is just what I think to be true. I don’t know from personal experience!)

So to get the Loop stuff into something shareable with your endo, I believe @ClaudnDaye is saying you need to use Nightscout.

Here is a link. @trying already shared this above, but here it is again.

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@JessicaD, I’m so glad you are having good results with DIY Loop!!

Glooko is not supported, hwr, as mentioned above Nightscout offers detail reports. Here is a link to Nightscout security as well as the general doc site. You can also use https://nightrep.zreptil.de/ to generate very indepth, professional reports based on your Nightscout data.

Tidepool also supports reports (by selecting the “Print” button on your Tidepool home page). You only need to signup for Tidepool to use it and it is free. Nightscout takes a “bit” of effort to configure so Tidepool may be useful to you, at least initially. Your Tidepool data can also be shared with clinics, too, (by selecting the “Share” button on your Tidepool home page), if you are comfortable with that. Tidepool has a nice UI but does not offer the customized control that Nightscout offers, such as ability to set low/high BGs, etc.

You can also enable automatically uploading of your data to Nightscout, as well as to Tidepool, in the DIY Loop (I’m not sure which Loop version you are using) and in Trio.

I, myself, use Nightscout and generate reports from my own Nightscout instance. I then create a PDF from specific Nightscout reports required by my endo, and just email it to her. My endo likes to receive the 3 month, 1 month, and 2 week “Distribution Report”, and 2 weeks for the "Day to Day Report.

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@Trying and @ClaudnDaye and @Eric – thank you for all of this information! It sounds like Nightscout, ideally, is the way to go, or possibly Tidepool. Now for the annoying/beginner/technophobe questions: is there a site or resource you could point me to that would let me start at the beginning? I start reading up on these resources and honestly it’s like they are in a different language (@Eric is having terrible flashbacks right now of me getting into/onto loop… he knows how I get overwhelmed by this stuff). But there must be a way that new diabetics start to figure it all out? Or do only the coder-brains use this technology?! Thanks for any thoughts!

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No, that was fun getting you setup!

We gotta figure out your watch if it isn’t working yet.

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You could start with Tidepool as it is literally just a matter of going to the link that I included in my previous post, then creating an account. Then, in Loop/Trio, enable the Tidepool service to upload your data.

Once you configure your Nightscout instance, you can enable the Nightscout service in Loop/Trio. I upload my data to both services.

To configure Nightscout, refer to the documentation at the Nightscout link that I previously included. If it looks overwhelming, we can all help either here on FUD or via DM. There are also a few companies that now offer professional services that will configure and maintain your Nightscout instance for a monthly fee. I’m not sure how much they charge, maybe $10/mth, not sure.

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There is also T1Pal which is a hosted paid (you can take tax deduction - talk to your tax person) Nightscout plan. One of the original Nightscout devs created this for all the non-technical peeps. It does cost money, but it always works. #thiswasnotapaidadvertisement

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NightScout is just a piece of software; using it requires a separate service. In my experience my endo will work with me using NightScout but I have to prepare all the reports etc; even though he/she can log in to my NightScout web site to read my data that does not happen.

TidePool, on the other hand, is something my endo uses himself (well, one of him; he has various manifestations, the PA manifestation is a T1 who uses TidePool). TidePool is FDA regulated and sort-of safe for endos and also much more widely publicized so a much better bet for endo-acceptance.

I just tried to updated my TidePool account from xDrip+ and, while there seem to be issues on TidePool’s web site (incorrectly classified password fields on a login page) the data upload does seem to be working, although only a few days at a time. xDrip+ has the advantage for me in that it is my data hub; it gets everything then updates NightScout and, if it works, TidePool.

Another possibility is to go from NightScout to TidePool, but I don’t know if NS support that. It doesn’t make much sense for me because I can, apparently, send directly to TidePool and in my experience NightScout looses half the data from xDrip+.

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Ok, I hate to sound like such a dope, but I am working through getting into the Tidepool system (figuring it is the more basic one for me to figure out first) and I can’t understand how I will get the insulin delivery piece in. Dexcom I can see will get into their system, but while I use the Omnipod Dash technology, I don’t use the Dash PDM – how will my insulin delivery show up in Tidepool? (I feel like I must be missing something big, but I can’t figure out what… )

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Hi @JessicaD maybe this will help, it’s from Tidepool.

https://support.tidepool.org/hc/en-us/articles/360029369472-Uploading-your-Insulet-Omnipod-DASH

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My Endo uses Glooko to consolidate data from all patients. I don’t use it (last I looked, it seemed “old”). I linked it to my Dexcom data stream because he asked. I use Trio’s built in data handling for GMI, SD, and COV for periods of 2 wks, 30 days, and 90 days. And provide Dexcom AGP print outs for the same periods as well as Nightscout data reviews for discussion of how I’m doing. My Endo notes the Trio data in his visit notes.

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Except she is not actually using Dash. She is using Loop (with the Dash pods). So she does not have anything on her Dash PDM.

That link only tells how to upload from the Dash PDM.

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@JessicaD,
I might have found what you are looking for.

The CGM data sharing is easy enough. There are apps that let you do that without any need for doing anything special.

Is it just the insulin sharing stuff you need help with? I think this can be done with an Apple Health export. I can work on that with you.

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