I am amazed how selfish some of you are. You have no consideration for your loved ones. My wife gets my BG and alerts for HER peace of mind. If I am very low for more than an hour, I can expect a phone call.
The last thing I would want is for her to come home to me in a hypo stupor. Or worse.
He is on board. We donāt take that lightly, my wife and I have worked toward this day with the thought that if he wanted to withhold his consent, we would have to live with it. With that in mind, we have always felt that we add value, and that he would want us to be a part of the decision making process until either we donāt add value or he has others in his life that would take our place. Everyone is replaceable, but no one will give the unconditional love of a parent. But no one wants to be smothered. A tightrope that needs to be walked for sure.
That has to be difficult. You have my empathy.
Not selfish Sir. Just determined not to be helpless.
Yes.
Not all of us have a wife/husband or real-time BG data to share with them. There are also lots of reasons why people might not want to have access to your data.
Sounds like you need the extra assistance, so very glad you have the choice and it works for you.
I choose not to share because 99.5 % of time there is nothing she could do. Iām at work, Iām out of town or she is out of town. Itās asking a lot to put that responsibility (keep me alive) on my wife.
With todayās technology there really isnāt a reason I should be going that low without addressing the issue unless im completely ignoring my BS. I know my BS, I know where Iām trending and I know how much insulin I have on board. Back in the day all I had was - am I feeling āshakyāāā¦lol not a great predictor of lows.
In the future depending on my circumstances I may choose or may need to share. But as of today there is no need, but glad I have that choice.
Selfish no.
I totally understand #3 and I am thankful that I am able to care for myself.
Umm itās not selfish to not share your data with your partner. Thatās great for your wife that she wants access to your data and finds it comforting. Do yourself a favor and donāt assume othersā relationships function like yours though, and donāt accuse others of having no consideration for their loved ones because they make different decisions from you. How rude!
My partner cares about me deeply and I for her, but she understands that Iāve got my own diabetes firmly under control. Iāve had T1 for almost 30 years, and Iāve never once had a hypo that rendered me helpless or unconscious, even in the majority of those years before I ever had a Dexcom. I have excellent hypo awareness (I usually know Iām going low before my Dexcom does). On the other hand, one thing Iāve had to learn with the Dexcom is to ignore alerts after Iāve already taken necessary action, because of the lag time, so I think if anything it would unnecessarily stress my partner getting low alerts when Iāve already treated and am waiting for my Dexcom to catch up, and it would stress me out dealing with that. All with no benefit for anyone.
You will.
That diminishes with age.
Maybe, maybe not. You really donāt know that. Given the way technology continues to evolve in ways that prevent severe lows, Iād argue its entirely possible if not probable Iāve made it through the most high risk part of my life for such events already.
Also, when Iām a senior citizen, Iām sure I will share my data, or if I become unable to take care of myself as well as I age. Iām not there at this point though, so your telling me and others than Iām selfish and inconsiderate for not sharing my data now is still incredibly rude and presumptuous.
Really? When does that happen?
I guess it has to be sometime after the 48th year.
Ok ok, letās not drive the guy away for trying to help keep someone safe. Iām sure by now heās fully chastised for expressing it in a way that reads as too arrogant to some of us. Time to ease off.
Speaking of choosing to not shareā always before Iāve had to generate a code or accept a share invitation each time at the clinic. Had no intention of doing so at the clinic last Fridayā- but somehow they already had it all when I walked in the door. I must have somehow accidentally given them permanent access last time. Does anyone know how to turn it off without causing a big scene?
Iām late to this party.
I totally donāt share. Tried it for 36 hours and it caused so many problems. Much much more hazardous for family safety in my case.
Diabetes is not one size fits all.
Data sharing is not one size fits all.
And no accusations of intent or character flaws are required!
Projection perhaps? I would say 30 years of not having one would put the odds in @cardamomās favor that she (and the many others here who have gone even longer than that even) will be just fine.
As has been stated, if sharing works for your life and your situation, great. But calling others selfish because your solutions donāt work for them is pretty childishā¦ Even for me.
We also know when Liam is low because he is 100% hypo-awareā¦ Iāve instructed his teacher and siblings that it doesnāt matter if his CGM reads 150, if he says heās low, heās low. And as @cardamom pointed out by the time his cgm reads low, we have already long addressed it and his bgs are usually back up over 100 again. So, what would a partner or family member do except unnecessarily worry and bug you for no reason?
But if you need that security blanket, GREAT!! Iām glad you have that! I hope when Liam grows up that he has someone like your wife IF THEY NEED IT.
Heāll always have his dad if we wants me to keep an eye out. :). Till my dying breath if he needs it, or wants it.
I experienced this, too. My internist seemed to have access to my ophthalmology records even though my ophthalmologist was with a different hospital. I think this was because both were using the mychart system. I never accepted the prompt to link my doctors or hospitals but I think they linked anyway as my internist knew all my test results from the other hospital. I was surpriised but it was not an issue for me.
So, you need to investigate who is linked to your online records.
Thatās pretty standard if theyāre sharing the same charting stuffā¦ and usually actually when you see a specialist like an ophthalmologist theyāre expected to report back to your primary care docā- thatās actually kinda how thatās supposed to work
And sometimes mysteriously things that make no sense happenā¦ like for example my mom has prescribed me an antibiotic cream to a local pharmacy and somehow my primary doc new about it the next appointmentā¦
But this was my own dexcom data uploaded from my phone to the inter webs that in the past Iād have to approve access to each time and this time I didnāt but they still had it
Try logging into Dexcom and messing around looking at your settings. Pretty sure the doctor share thing is in there.
Or maybe call Dexcom and ask them.
There would certainly be a requirement for them to allow you to turn it off.
