Since no one on my wife’s, or my, side of the family has ever had T1 that we’re aware… it’s not related to genetics (at least who’s side of the family it came from), with Liam. Maybe there is some gene or something that makes him more predisposed to it, that was possibly handed down? Since scientists still don’t fully know, I’ll be looking forward to the day they figure it out for sure.
I like to bury my head in the sand on this one but… there is a higher probability of getting T1 if your father has it or there are other autoimmune disorders in the family. But it is not a 100% probability.
If an immediate relative (parent, brother, sister, son or daughter) has type 1 diabetes, one’s risk of developing type 1 diabetes is 10 to 20 times the risk of the general population; your risk can go from 1 in 100 to roughly 1 in 10 or possibly higher, depending on which family member has the diabetes and when they developed it.
But as you say, it is not entirely a genetic thing. For me, none of my parents, grandparents, or great-grandparents have T1. My dad had a cousin who had LADA/T1 but that is about it for family ties to T1.
So I was a 1 on 100
I do not like to get caught up worrying about this sort of stuff. I file it under - stuff happens in life and you need to deal with it.
Sorry to hear about the genetic lottery for your son. I’d be quite surprised if none of our kids develops T1D, given that my Sister in Law is Celiac.
I like your attitude though, we can’t go thru life watching for the sky to fall…
no one in my family has T1 but we have rheumatoid arthritis, lupus and MS on one side and hypothyroidism on the other. WE have done genetic testing and neither of us carry the genes that are particularly associated with T1, though I carry a handful of genes that modestly increase the risk of T1. So from 1 in 300 to 1 in 150.
Hi all. I am a 58yo who has been type 1 for more than 20 years. My other health problems include three abdominal operations for bowel cancer and complications, spinal surgery for disc prolapse, longstanding Addison’s disease and several screws in one shoulder and one ankle. I was not athletic at school, but am now a sports junkie and generally doing OK.
A sports junkie, huh? That’s the best. what kind of sports, if you don’t mind my asking?
Welcome NickM! Glad you have joined. It appears you are quite familiar with all manner of physicians based on your description. Looking forward to getting to know you more, and interacting in our little corner of the interwebs.
Which area of the world do you reside?
Welcome, @NickM! Sorry you’ve had so many complications, but glad to see you work through it all and find your way to FUD!
I’m from Canberra, Australia. Being winter here skiing, both skating and AT, are on the menu. I also climb, mostly indoor bouldering, but I have also recently taken up outdoor climbing after a 10 year break. I was a mediocre runner at school before giving it up in my late teens. I could never make even the school relay team. Then I took up running again just before turning 50 as my kids were doing it. After retiring at the age of 56 I ran on an athletics track for the first time in my life, and loved it. It now has a regular spot on my calendar. I dabble in lots of other things - inline skating, unicycle, chess and am now trying to learn slacklining.
Wow, we don’t have a lot of folks from Australia, but that is awesome. I am getting tired just reading your list of sports, except for unicycle. That might just qualify you as “weird”, which doubly qualifies you to join our site.
Thanks Chris. I am happy to be called weird, unconventional, or even unreasonable, as GB Shaw meant it. In fact if there is one thing I have learnt from the last 20 years with T1 it is that the weirder and more unconventional I become, and the more I reject current medical dogma, the better my sporting performances.
My dad used to tell me about how he had never played sports in school but had always wished he had. He discovered running at almost 40 and ended up running marathons 20 years apart. He also dabbled in tennis, basketball, and swimming, but he was just no match for his ultra-competitive daughter.
I’m reading all of your posts in an Australian accent. Hope you don’t mind.
And now I am thinking about a Monty Python sketch about mosquito hunting… see what you did there
My youngest watched the Monty Python video with me and kept asking why they had a potato gun like mine.
I’m not sure if I want to be lumped in with all the other T1s from these parts. I am a citizen of the world and I speak the language of maths and other sciences. Long term outcomes for T1s are far from good around here. So much so that the powers that be have taken to hiding the results of audit and QA data. Health system spin-doctoring and suppression of dissent are very lucrative fields for Australian lawyers.
Did not know all of that.
I will go back to reading your posts with no accent, if you prefer.
Trying to get a grip on this thing, a late onset of type 1 really threw my life for a loop. Did 14 years Active Duty, while overseas in a remote location with limited medical I lost over 70 pounds in the course of a year and was walking around in DKA and my bgl was over 500 when I made it into the hospital. Went in for a medical screening for another deployment and thats when they caught it. Was in denial about needing the insulin, the honeymoon phase really made accepting the diagnosis that much more difficult. Only having to take 5 units with a meal turned into a year of not taking anything because I didn’t feel sick. I have finally accepted that I need to get my diabetes under control, luckily I found this forum.
I haven’t been around here long enough to guarantee long term results, BUT I think you may have found the greatest forum in history.
I’ve been diabetic for 15 years and just decided about a year ago to really learn my disease and take control. So I’m the most experienced noob on the block. Anyway, welcome, and I hope you find everything you need here.