FUDiabetes

Welcome, introduce yourself here!


#818

Awww… is that your boy?? He’s a healthy, happy looking boy. :hugs:


#819

Both are my sons. Jimmy 16 in front with glasses on, George in back 14 (T1D). George complains that his brother used up all the genetics :smile:


#820

They are BOTH beautiful, strong, healthy looking boys. Good genes equally divided. :grin:


#821

Welcome to the site Sunny. There are so many reasons I love FUD - hope you enjoy!!


#822

Welcome @Sunny! There are many parents on our site (unfortunately), my son is 15 and has had T1 for 2.5 years. It was a Christmas present when he was 13. He just got back from diabetes camp and is trying to regain control after a week of “camp-control”. He uses a Tandem X2 pump and a Dexcom G5 currently. We are always striving for more control, and FUD is a great place to learn and help others. Thanks for joining!


#823

Welcome @Sunny, I read your profile and checked the link to the T-Rex study. That’s wonderful! Please keep us updated.

I was diagnosed at age 5, on Presidents Day. A day I still have clear memories of 50+ years later.


#824

Welcome @Sunny, so glad you’re here. Lots of us parents here, my kiddos are 6, 4 and 1 – the 4-year-old was diagnosed 2+ years ago.
So many helpful people here at FUD – hope you can find some useful info and support here!


#825

Welcome @Mike! Sugar Surfing is available for free as an e-book if you are newly diagnosed (in the past 90 days). Just go over to sugarsurfing.com and click the button for the free e-book. Another thing you may want to consider is the Children with Diabetes Friends for Life conference that takes place in Orlando every July. We have gone as a family for the past few years and I would have to say that it has been the highlight of our year. This year there will be over 700 T1D families attending and many sessions to learn including sessions by Dr. Stephen Ponder (Sugar Surfing) and Gary Sheiner (Think Like a Pancreas).


#826

Hi I’m Jen. Just trying to get active in the diabetes community again after not feeling too great about reddit and…well…tudiabetes (just really read about that drama and ehhh made me feel uneasy. Not to hate it but it made me uneasy). I’ve had type 1 for 5 years. I was 22 when I was misdiagnosed with type 2 and after a while I got properly diagnosed as a type 1. I’ve been through some stuff (putting it lightly, the word I wanna use isn’t family friendly) and have experienced bile duct stones as a type 1 , being uninsured for half of this year , too many pharmacy fun times to talk about, good docs and bad docs etc…all in 5 years lol. I’m a CNA(Certified Nurse Assistant) with dreams of being a diabetes educator. For now I’m a CNA with a heart for diabetes advocacy for all diabetics (not just my type 1 friends but type 2 and MODY too). I live with my really supportive fiance who’s been my ear for diabetes vents for like 3 years now.

I use mdi and I’m in the biosimilar club with Admelog (NO ONE POSTS ABOUT THIS, IT EXISTS!!! LOL ) and basaglar because I’m on medicaid. I’m prolly the resident pump hater , but that’s personal and I’m glad it works for other people than me. I am not technology adverse however and love the freestyle libre (would have it if medicaid covered it) and love the bayer contour next and will sound like a sales person for this meter if I talk about it :heart_eyes: .

hope that wasn’t too much of a ramble, I ramble a lot.


#827

Welcome! I’ve never heard of CNA, although have met with MAs, not related to diabetes.


#828

CNAs are the people who usually help with the personal care (toileting, feeding, bathing,dressing, transferring) for residents in ltc (nursing homes and assisted living) and patients in hospitals and we help nurses by doing things like vital signs (in my old hospital job I even did blood sugars, though at my assisted living job the nurses do that) and a big cna duty is observing the patients/residents for the nurses like if anything’s going on that’s different and reporting it before it is a bigger deal. The big perception is that we wipe butts so there’s that :disappointed_relieved: . Very physical job (lifting people and moving them in bed is really difficult sometimes) and it’s been interesting as a diabetic for that. I work nights too , so that is also an interesting thing to deal with+ diabetes because other than the 3 days I work a week I have a normal-ish schedule. I test enough to where I think I know how things are going and usually it’s ok (if I eat a quest cookie or something like it sometime during the night for sure on that!) this is where I wonder what it’d be like if I had a dexcom or libre but alas, medicaid won’t let me as a rather healthy diabetic with no complications at all and a 5.8% a1c lol.


#829

Welcome! My husband’s an RN and…I don’t know how y’all do some of the things y’all do.

I was 25 when I was diagnosed, though thankfully diagnosed as LADA/type 1.5 before I was misdiagnosed with type 2. Ha.

I don’t understand insurance…mine won’t cover the Dexcom for me (though it does cover some of the Libre). You would think they’d be more motivated to help you keep being a healthy diabetic to avoid costs of any complications.


#830

I don’t either honestly, but someone has to deal with things. I’d say it’s mostly heart warming but I also have to be the one deal with the gross stuff no one in the world wants to deal with (BUT I CAN TELL YOU ALL ABOUT IT! :joy: ) . Most my cna experience was in the hospital and everything I never imagined can happen there. I miss that job.

I don’t get it either. I mean I get it, I’m pretty healthy, but I’m also curious. I wonder how every activity affects things. Like I wanna get into exercising instead of just thinking my job’s enough , but everyone tells me exercise requires a lot more monitoring and I already test a lot and pay out of pocket so I can use my favorite meter. Also just curious how emotions, intimate activity, job stuff, traveling, stuff like that will affect my blood sugar as an individual and I can only see some of the picture with frequent testing. I wanna see if I can run a true flat line or if my testing isn’t showing me a true story :disappointed_relieved: . I also just wanna try the app stuff involved as I’m a huge nerd and my love in life is computer and phone stuff (and video games) .


#831

Thanks for the details. Sounds very challenging to manage BGs with the types of physical activities involved, and likely different each day or night. Kudos to you for doing so well.


#832

Yep, my husband works in the hospital. He loves it and can’t really imagine leaving it.

Yeah, you get a much more complete picture with a CGM (or Libre’s FGM) than finger sticks unless you’re poking yourself 20x a day. Some days I was doing a ridiculous amount of sticks, particularly when learning how to use Afrezza.


#833

Before the cgm we were poking Liam a minimum of 48 times (twice per hours) per day… More because the nights always shared the crap out of me as he slept peacefully… The thoughts going through my mind caused me to poke incessantly and never sleep.

I am thankful for the CGM every day


#834

:anguished: I’m so sorry. I can only imagine…when my daughter tested @190 a couple weeks ago, there were some pretty scary thoughts in my head that night as I laid there wanting to go test her and make sure she was ok…and that was just a one-off number (so far), not the real deal.


#835

Welcome @Sensorium139, glad you found us. As I am sure you have figured out, we are a rogue offshoot from one of the sites you mentioned. We have a different feel, and hope you find our corner of the internet a happy informative place.

You are correct, I searched and yours is the third mention of Admelog, so you are very unique!

On the testing front, we also purchase many strips for the contour next on Amazon. It is about the same price as our copay’s and Amazon is easier to deal with than insurance. You may want to give a look at an even cheaper meter for your forays into exercise, you could still use your preferred meter for meals, dosing and such and perhaps lower your costs while still getting valuable information.

If someone in your family wants to help, you could glean a tremendous amount of info from just one or two months of a libre or a Dexcom. While we love the continued use of it and get comfort from the alarms we have set, we learned the most the first few months we had it.


#836

It made me feel uneasy too. I am definitely the resident pump hater, but I’d be happy to have your assistance;)


#837

I have four kids too. The youngest one drew the short straw in the genetic lottery as he has both T1 and celiac. I would love to take all the blame but I think my wife’s great-oma had T1 too so I may not be the only donor.