Still minimal follow-up from endo

I have had the Twiist AID pump since Oct, 2025. Had the Twiist trainer do a two hour prep and then declare that “you are done with training, now go to Twiist customer service”. Twiist service is excellent and I have called them for hour long assistance about 5 times since. My endo has never seen me except out in the hallway talking to the Twiist trainer (about my settings on pump). I had an appt with endo, cancelled due to bad weather, in which he called me telling me to adjust my settings but no explanation. I have had some bad highs and three lows since…..no other guidance and not aware of any appt. I have felt “on my own” basically since I have had Type 1 (since 2022), have read the Twiist training manual for help. The trainer said “we will become good friends” yet when she told me to call, no answer, no return call or text. The most help (advising me to get CGM Libre 3) came from my dietician (now moved to other state) who also advised me to get tested for Type 1 when I was dx. Type 2 for 2 years. Thank for listening….hope every T1D does not have experiences I had.

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I am sorry that you’re still on your own. Do you have an in person appointment scheduled with your endo soon? Whenever you have that appointment, it will be important to come with a list of your questions. You’ll be much happier when you feel you understand enough to be able to make adjustments to your own dosing and to trouble shoot when things seem out of whack. That comes from reviewing your data with your endo (or educator) and understanding if and how any changes are needed. Docs are busy and you often must take the initiative to get them to explain their thinking to you.