Small suggestion to widen participation

I’ve only been here about six months but was active on TuDiabetes for many years. I offer this suggestion as a minor way to widen participation in our community.

It’s easily observable to anyone who frequently shows up to both read and post to community topics. I’m aware that there exists many quiet participants who read but never post, also known as lurkers. I was a lurker on TuD for about two years before I started to comment and post.

I encourage both posters and commenters to reconsider their use of undefined acronyms or use of “insider” language. My internet browser defines an acronym is a word formed from the first letters of a multi-word phrase. When people who read acronyms that they do not know what they mean, it represents a barrier to posting or commenting. People may think that they don’t occupy a perspective that the community values, so asking “What does this mean?” seems risky and not worth the effort.

Here’s an example from a recent post about morning blood glucose rises often attributed to Dawn Phenomenon, DP, or to another distinct occurrence many diabetics call, “Feet on the Floor, FOTF” syndrome. In the thread I refer to, the FOTF term was never defined until one brave commenter wrote:

I was guilty in this thread as were many others including the original post that included FOTF in the title.

You may think this is such a minor thing and that anyone with an interest in diabetes would certainly know that acronym’s meaning. If you look at through the lens of a lurker who might make the leap to become an actual commenter, it begins to look like a hurdle that holds back participation. They might be thinking, “Why don’t I know the meaning of this term? Most everyone else seems to. I don’t have the level of knowledge to even make a comment.”

Now I understand why those of us who are active commenters and posters, are often disinclined to explicitly define acronyms used. It takes more keystrokes and time and basic idea you’re trying to encapsulate seems much more important. I get that and remind you that I was just as guilty of using an undefined acronym as many others in that thread.

We only have the written word to communicate, connect, and make common cause with each other. Effective use of that written word is important and requires more than spoken interchange. When undefined terms are exchanged in a group, it excludes some. It may not be deliberate or intended but the exclusion persists. “You’re not in the know or in the club.”

This is not a new thing; it’s been around as long as human language. People have long used language and slang as way of communicating safely while others within earshot are deliberately excluded. As humans, we have an innate sense of this communication quality. Cockney rhyming slang and the latest youth slang are both forms of excluding some for the benefit of others.

Deliberate exclusion of any members of our community, whether active posters or lurkers, is not anyone’s intention. I only bring this up because I believe it’s important and with a little effort, we can improve our community. What do you think?

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Yes, I’ve been guilty of it. What I’ll try to follow in the future is to spell out the whole phrase the 1st time in a post and then use the acronym afterwards. Another thing as we have international members and lurkers is we should always use the units of measurement for blood glucose, HbA1c as % or mmol/L. The later is being used in some countries.

When my Mom worked at NASA (I hope no one needs that spelled out) her note book of government acronyms was not a best seller but most copied at the Johnson Space center. Copies may still be circulating around the aerospace world.

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This is standard journalist practice but is not well observed in the social media world. I like this practice yet try hard to resist the curmudgeonly urge to point fingers and make correction. When did I slip into the elder cohort?!!

No matter the era, politeness and kindness never become ineffective. At least not in a world I’d like to be active in!

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I agree with you on this @Terry.

I really dislike acronyms. Sometimes they can be useful if you have to keep repeating the same thing many times in a post.

Agreeing with @CarlosLuis. It’s helpful to at least adopt the standard of writing out the full phrase the first time it is used in a post, followed by the acronym in parentheses.

He had to check his blood glucose (BG) when he woke up.

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In the blue header of every page on FU there’s a link to a list of diabetes-related acronyms. FOTF is not listed there, but many terms are.

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Before I retired I worked across lots of different companies, and they all had their own special set of acronyms. What got me was that it happened pretty regularly that when I asked what an acronym stood for, the people I was talking to did not know the acronym’s provenance - at all. They only knew the thing by the acronym!
Everyone has acronyms and uses them all the time. As one of the impeti for @Terry 's post, I would like to just note for the archive that I personally don’t have any trouble with acronyms, and this one was a real good example of what you can learn by asking what they stand for. @TomH sent me a pm explaining what FOTF was. But I had never heard of it (or maybe i knew all about it but forgot …). So now I know.

My favorite acronym:
POTS - for plain old telephone service (now unavailable in my town)

ISDN - for i still don’t know (that’s a joke)

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As a retired telco central office repair technician ISDN = Integrated Services Digital Network

It was a higher speed protocol for data transmission over copper wires, but not as complex or expensive as Transmission 1 (T1) -T1 line is a dedicated digital connection that delivers 1.544 Mbps of symmetrical speed using twisted-pair copper line.

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I used POTS once where we bought our cabin in West Virginia, I was buying alarms for our water system and needed to know what type to look for. The lady I said it to looked at me like I had two heads! She wasn’t aware there were different kinds of telephones lines other than “regular” and fiber optic.

BTW, ISDN=Integrated Services Digital Network, it allowed regular copper wire that normally carried analog signals to be used by a digital communications system. Its being phased out, but copper is still maintained as a system of last resort in many US communities for telecom needs. Many telecoms are faced with thefts of the wire on poles as its cost has skyrocketed and people tend to hack the lines, peel them, and melt down the copper for resale.

Tom

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But declining I expect. In our town in Massachusetts, Verizon has taken out all reliance on copper - it’s all fiber optic now.

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I’ve read diabetes sites that automatically annotate items that are recognisable to include appropriate translations. E.g. TuD is Spanish; a link or footnote is appropriate. ISDN is a well known acronym that does not gain any meaning by being defined (I know what it is but I certainly don’t know what it stands for, likewise NASA). Saying that any of these things do not need definition is reasonable but fails to comprehend the number of people who read this web site.

“BG” is a certain example; it probably doesn’t need defining but when someone says “my BG was 40” that certainly needs definition. Is that 40mg/dL (2.2) or is that 40 (720mg/dL)? This was an automatic annotation that I remember seeing, maybe it was on TuD (Tu Diabetes, the American English language version of the American Spanish language Estu Diabetes, a widely read enthusiast diabetes web site).

Simply providing a definition once in a thread is not adequate; consider, “Divide by 18” as a definition of a BG. Most people don’t read the whole thread, certainly the second time. Definitions in a central page are simply not useful unless there is a link on the reference to the entry in that page.

This can be done. Here’s an old post of a solution provided for Discourse:

That’s not enough; the mg/dL to mmol/L convertion is a big deal (an American phrase for something of great import). Acronyms of course are a no-brainer (an American term for something that is obvious to anyone of moderate intelligence.)

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Fair enough! Your perspective made me realize that my original take on this topic is too simplistic. As a native American English speaker I can easily decode expressions like “big deal and no-brainer,” but it’s harder for non-native English speakers. Much less, idioms like, “piece of cake” (meaning easy) or “bite the bullet” (meaning face hardship) can create communication hurdles for many, especially people using English as a second language!

Defining every acronym on first use is easier for journalists since they communicate using a longer form than is typical in a specialized social media forum.

I’m sure many are not interested in a semantics discussion but a heightened sense of awareness on the part of the few dozen who participate here regularly might help those marginal lurkers who are curiously checking out this forum.

I also recognize the responsibility of any reader to make reasonable efforts to understand whatever vernacular is being used.

It’s not as simple as my original post implies!

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It is an interesting question. Any lurkers out there who want to chime in?

eta: “chime in” is a similar idiom as “chip shot” - both encourage a short post letting us know that you’re out there, reading and waiting for your ideal moment to add to the conversation. This could be it!

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Thanks for writing Terrie, I’m doing this by voice text in an emergency room, waiting with my husband. I also like Tu Diabetes lamented a lot about its demise. When I first entered the Diabetes world and realize how many abbreviations and acronyms are used so I downloaded a list of four pages of abbreviations because it was impossible to understand people. Good ideas, but not sure it will help much on the participation.

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Thanks for giving your perspective, @andrea8. And best of luck with your husband’s health care ER visit.

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Nice to hear from you, Terry. I hope the “natural” language in postings helps but don’t think that’s the only problem. Many people are absent. I miss Marie for instance who helped me a lot last summer.

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She’s here @Marie

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I don’t know why I haven’t posted much yet. I belong to another site for visually impaired people that is a lot more active. I’m a type to 33 years. I occasionally check in. I also take a quick look when you send the weekly post so I’m still here and I’ll try and get online. I’m a little more. We are trying to sell our house, that’s not stress to begin with. I am very happy to have friends here though so I’ll be a little more alert Nancy 50.

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My immediately previous comment [in a different thread] reminds me that I frequently post screen-shots of xDrip+, AAPS and so on showing various D information. Many people do this, particularly to post BG charts. These screenshots cannot be read reliably by people with limited vision or at all by those with no vision.

It would be good if there were an obvious way to add captions to the pictures we post. I don’t know how to do it but someone does, if it is possible. It would be better to use AI to generate a caption, however bad, and make it so that it is edited by the poster. In other words make it so that posting a picture also creates an in-your-face [US; unignorable] caption to encourage good captions.

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Just put the text below the image. You can put it in italics to make it more of a caption. If you want to do it within the image, use an editor like paint or whatever you prefer.


No need to be AI complicated. This is a frog.

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You can also drop an image in ChatGPT or other AI buddies and say “add a caption inside this image, labeled “Frog”” and it’ll add it. Download, attach here.

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