i started getting neuropathy about 8 years ago. it was mild at first; just pins and needles. i broke all 5 metatarsals in my right foot. i was completely numb and couldn’t feel my leg or my foot; i went to a diabetic specialist surgeon, and foot MD from NYU hospital. one of the best in the business. i had no idea what i was in for in the upcoming year. i went through 3 different kinds of casts and one walking boot.
what happened was that i couldn’t feel my foot or lower leg when i got out of bed one morning and i fell over and everything just went “crack.” i had to go to the ER, and i was in so much pain, they gave me morphine. still, even with that opiate i was in excruciating pain. i was screaming throughout the X-rays. it was a holiday w/end so i got a lousy intern to attend to me, and none of the doctors there could make a clear dx. so i sought out the specialist.
when i saw the specialist, they wrapped me up, gave me some crutches and sent me home with some strong pain killers. it took me an entire year to heal. i was bedridden for the first 3 months, and as my husband was working at the time, i was alone and had to set up i system for getting from my bed into the kitchen. i slid around our home on a big pillow user my tushy. i set up the kitchen so that it would be as practical as possible. i binge watched NetFlix and dosed on and off in a drug induced sleep.
anyway, about six months into my healing, and having my 1st cast taken off, the neuropathy had gotten worse. i couldn’t feel my foot or toes at all. everything was numb. i started to fear the worst; i was afraid that my foot would have to be amputated. (i had an uncle w/ T2 who had had to have both his feet amputated.)
anyway, fast fwd a number of years, to the present day. my neuropathy doesn’t hurt like some of the other PWD i’ve heard about. but, i get so numb that sometimes i cannot walk. or my hands get numb and i cannot feel them at all. i try and shake it off, massage it away, etc, but it frightens me; i keep thinking about my amputated uncle. is this going to be the road that i am on?
are there others of you who have experience with this? i am concerned. my A1cs are excellent. my endo said that there was no cure, but he didn’t seem so concerned (which i thought was weird). the meds that are available to lessen the discomfort are contraindicated for me, so i cannot take them. is this just another part of the D package? i already have D gastropareses. i have been T1D for over 30 years now.
all info appreciated. thx, Daisy Mae (DM, as eric calls me )