I haven’t posted anything yet, but I read almost everything I see. I appreciate this community very much. Although I am elderly, I am a rather new T1D. I have learned so much from your posts. Thank you, and Merry Christmas, Happy Holidays, Peace and Joy in whatever traditions you celebrate.
Great to have you here @Sally! Welcome to FUD!
Welcome! Happy Holidays!
@Sally Welcome to FUD! Feel free to jump in and discuss any topics, questions, comments you may have!
Glad that you’ve joined this group! Welcome.
Welcome! I feel that those of us with adult diagnoses get so little information that groups like these(plus the couple of books out there) are essential.
Thanks so much. That is so true. I also find that people think I’m wrong - that I must have Type 2 since I was diagnosed at 70. I am grateful to all the folks here for sharing the knowledge they have gained from their lived experience with T1D.
It’s great to be able to chat with and listen to others who really get it!
Beat you on age Sally. I am 75 anc my insulin dependent diabetes was triggered by my one and only dance with Covid in March of 2023. What we have is actually LADA which confuses folks even more. An endo at Stanford Hispital told me it’s actually not uncommon to have diabetes onset at a late age. I console myself with the fact that I will not be taking insulin enough years to cause complications. My go to bible is Diabetes Strong. Watching well produced videos helped me get through the initial terrors. I am 94% in Time of Range. Good Luck. Stay strong
I also find that people think I’m wrong - that I must have Type 2 since I was diagnosed at 70.
[/quote] - that’s always annoying but I try to remember that I had NO IDEA a few years ago that adults got Type 1.
On the bright side it’s pretty lucky that you got the right diagnosis. It seems pretty rare for providers to give antibody testing to those of us over 40. I had to go into DKA before I was tested and i had even been seeing a endo for 5 previous years for thyroid.
Not a contest either of us wanted to be part of, but yes, you’re older, but newer than me. I’m sorry that you had Covid. It’s no fun, and to have such a side effect! My husband and I had our first bout in October. Hubby has elevated blood pressure, and my sense of taste and smell took about 6 weeks to come back.
My T1D happened as a result of side effects from Immunotherapy. BG was normal on one test and a few days later 24+. I was admitted in DKA and spent a week in hospital getting sorted out. The upside is that I was treated in hospital by a wonderful Endocrinologist who took me on as her patient. I also understand that we won’t have the complications as long as we manage our disease. I’ll have to check out those videos. Thanks for the suggestion.
I too was in DKA before receiving the right diagnosis and getting sorted out. My Endocrinologist is the one who sorted me out and is still with me today. When I hear of people who have had a problem to get into a good endocrinologist, I realize that the silver lining of DKA was getting fast-tracked to my wonderful specialist.
Hi Sally. Sorry to hear about yours being triggered by immunotherapy. I hope that is going well. The strange thing about my case of Covid was that it was so mild. I had a sore throat for a day and then lost my voice for about a week but didn’t feel bad at all. It didn’t stop me doing much. But going in for a routine blood test showed that my A1C had soared from 5.6 to 10 in just a couple of weeks between blood tests. I had to start insulin immediately - what a shocker. I am grateful for the CGM (except last night when it had me guzzling fruit juice at 1am as I had dived down to almost 40bg - turned out to be an error - finger prick showed I was at 180 after all the juice).
I wish you the best and hopefully we can continue to take advantage of all these online resources I have learned so much detail that my Endo never explained to me.
Here’s to a health(ier) 2024.
“ If dogs don’t go to heaven, then when I die, I want to go where dogs go ”
— Will Rogers
Thanks for the suggestion about Diabetes Strong. I’ve watched a few of her videos and learned lots already. Interesting person with a good attitude about our disease. With her many years of learning to manage and still learning, I find her inspirational. That’s how I feel about what I’m learning from this forum too, and all the folks like us who are trying to do the best we can.
This type 2 is facing post surgery immunotherapy, so I learned from you of the possibility of it triggering type 1. It doesn’t scare me but something to consider.
I will get a fresh supply of ketone strips before starting.
This is a great group of people.
I have learned so much from this community although I only joined a short time ago. I’m thinking we’re all works in progress and will gain by sharing our thoughts, ideas, knowledge, and experiences. I wish you the best with your cancer journey.
This is my 2nd go round, 2 unrelated. The 1st was prostate and was completely taken care of with surgery. Now it’s bladder cancer. Here’s a couple of cycling jerseys from a fund raiser ride for our local Cancer Clinic.
Also my second cancer, thyroid which was surgically treated and that was it. The second time it was melanoma. I had two surgeries and then started Immunotherapy, which was suspended after 6 months due to the rare side effects I now live with. But I am Living! I’m so lucky to have become diabetic at a time where technology is a great help in managing our disease, and there is so much help available, including this community.
By the way, nice shirts!
@Sally thyroid and melanoma, glad you got past it. The chemo I just had can wreck the kidneys, liver and cause peripheral neuropathy, but I don’t have any signs of that.
I love those jerseys. They give them to people who had cancer. I had 3 but gave one to my cancer survivor friend Wei.