Three years in and we’ve not met with or had Liam around other T1D kids…the opportunity just never presented itself. That changes today. We are scheduled to meet up with our local T1D families club in our city at a volleyball arena and while the older T1D’s play volleyball, Liam will be playing with, talking too and having fun with other T1D kids around his age. He’s looking forward to it.
Meeting other caregivers in the local area has become important now because we really want to pick their brains and determine what is and isn’t allowed in the county as far as our 504 accommodations are concerned. I have a list of 54 accommodations that I want to run over with the parents so that I can get their feedback. Liam will be the youngest there, but there will be a few kids close to his age (6 - 10 years old). This will be good because their parents will have 1st hand knowledge of what works and what isn’t working so well within the county and will help Erin and I in the formulation of our 504 bullets for the big March meeting with the county.
I already know there are some problems with restrictions being placed on the nurses at the schools (for instance, parents have complained at board meetings that nurses aren’t even allowed to change batteries in devices! To me, this is just INSANE.) So, I’m looking forward to meeting local parents so that we can figure out if public school is something we want to do for Liam right now, or if we will be homeschooling him until he is old enough to basically do everything by himself. I’ll check in after the meeting if there are any nuggets taken from the event.