It’d be nice if the triggers of those kinds of days could be identified, right? Maybe we’ll get there eventually.
3 Likes
It sure would! After more than 26 years, I still find some of the totally random days baffling as to their cause.
2 Likes
Today has been a day of hovering high (7.0 - 10.0) for most of the day with multiple corrections, then tonight being stuck at 15 mmol/L for the past several hours despite taking about 20 units of insulin.
I think the hormones have begun…
I think tonight I’ll take 11 units of Tresiba.
2 Likes
I’m also “cheating” and connecting my pump for bolus purposes only tomorrow. I’ll be out in schools around other professionals I don’t know that well, with probably only a chance for one or two bathroom trips during the entire day. If I’m running high, I’d like to be able to bolus whenever I want to.
3 Likes
Spent all of last night hovering between 14-16 mmol/L.
If I continue running so high all day today, I wonder if I can double my Tresiba dose in one go, like take 20 units at each injection rather than 10. I’m doing 11 this morning, but that doens’t seem like enough to make a dent.
2 Likes
I’m tempted to go back to the pump too, but what I’m disappointed about is how limited our options are (especially in Canada). I’m not impressed at all by the 630G, other than being waterproof I don’t see any new useful features and it seems like it is bigger and cumbersome to operate. I have the Omnipod currently and stopped using it due to site issues that were worse than my Medtronic pump. Even if the Tandem comes to Canada I don’t like how long it takes to prime from what I’ve read. None of the companies have done anything to improve infusion set technology, which is the biggest problem with pumping. I’m hoping something great comes along soon. It sucks right now though since all these companies are touting all these wonderful advancements, yet Tresiba and Fiasp are nowhere as good as they should be for many of us and pumps are becoming more complicated without actually making life easier!
2 Likes
Yeah, I’m not a fan of any of the pumps in Canada. I may like the t:slim, but it has to get here first…and even then, there are some features I won’t like (plus I’m worried that the screen will be too small for me to see/use). With the OmniPod I’m worried about site issues, since I definitely have a history of those, and it doesn’t have a touch bolus feature. And the Medtronic pump doesn’t use Dexcom, and is bulky, but I’ve seen it and the screen is large and has a black background (important for me) and I like the other features (connected meter, waterproof, site change reminder, etc.) that may be what I end up going with if I can’t use the other two.
I connected my pump this morning so that I could use it to bolus today, and I must say, the temptation to just go back to the pump was very strong!
2 Likes
I don’t blame you! You’ve been a champion about really giving Triseba a good run. Continuing on through the hormone cycle stuff that occurs would really give you the whole picture though.
Whatever you do, I hope today is good and you feel well!!!
3 Likes
If you are able, you might try downloading the tslim simulator on your phone. I use it on my iphone to get screen grabs and look at options that are available without bugging my son. It gives you a good view on what the screens feel like.
@Jen, the screen on the TSlim is actually and surprisingly easy to see, even for those of us that have visual challenges. I was concerned that I would not be able to turn down the brightness at night, but so far it hasn’t been a problem and I don’t feel overwhelmed at night with an obnoxiously bright screen. I can see clearly without my glasses, something I am unable to do on my cellphone. Sunlight doesn’t seem to be a problem either. The small size is both an attribute and an inpediment for my “fat fingers”.
3 Likes
I tried this several months ago, but it’s only available in the US App Store and to switch regions I apparently need a US credit card. I gave up at the time, but should give it another try.
I’m legally blind, so my vision challenges are very extreme compared to most. lol. For me, the brighter the better (as long as the background is black). I hope that it doesn’t have an auto-dim feature or that, if it does, that it can be turned off, because I set the screens of all my devices to maximum brightness and leave it there all the time. I’ll have a look at the screen, and I don’t expect that I’ll be able to read it (I can’t read any other pump), but it’s really a matter of whether it’s usable without actually having to read the text if I memorize where various icons/buttons are (most other pumps can be used simply by memorizing the menus and counting button presses). I do have magnification devices that I can use for complicated things like setting up basal rates, but it would be nice to be able to do simple things like suspend the pump or calibrate the CGM without having to use another piece of technology. For boluses, I use the touch bolus feature 95% of the time.
3 Likes
@Jen, Wow! That has to be so tough! I cannot even image what you have to go through on a daily basis. My proverbial hat is off to you!!
I don’t think the TSlim has an auto dim feature, but it is very bright. Given that it is a touchscreen, that might be more hassle than you want/need. It doesn’t have very many tactile indicators other than the quick bolus/on/off slider and the cartridge tubing.
2 Likes
It’s not too tough. 
I was born with the vision I have, so I haven’t had to go through any type of adjustment, it’s just normal to me. It hasn’t held me back at all and has even influenced my career path in a positive way.
They make tactile screen protectors for the iPhone/iPad (“Speed Dots”). I bet I could make something similar for the t:slim by cutting a screen protector to the right size and embossing braille dots at key locations. But I have enough vision that I can see to locate icons/buttons on a touchscreen device if I get really close, I just can’t read the text (without high magnification).
But yes, this pump is definitely something I would want to try out before buying.
2 Likes
@Jen You are amazing!
When the time comes for a pump switch, Tandem definitely has trial units - I used one. They also have several deals going on now with the Animas exit. I have no idea what the return policies are, as I have no intention of giving mine up. In fact, the only other pump I seriously considered was the Omnipod. I went with Tandem because of the upcoming updates this year - PLGS and HCL which will be free updates.
2 Likes
Well, today’s been a 90% high day. I bolused 12 corrections throughout the day and still hovered between 9-10 mmol/L. Having the pump was so nice, because I was out and about for most of the day and only in the office for about two hours. Being able to do corrections while working with kids and in meetings without skipping a beat is one feature I’ve definitely missed!
I did 12 units of Tresiba this morning, but I think I may increase my doses to 14/14 and see how it goes. Hard to tell, because I don’t want to suddenly go too low when there’s no quick fix…but I also hate running high even with constant corrections.
3 Likes
I took 14 units of Tresiba last night. The correction I took before bed brought me down nicely, and I spent the entire night hovering around 3.8 - 4.4 mmol/L. 
I think I’ll stick with 12 units of Tresiba this morning and see how the day goes.
1 Like
High, high, high, high, HIGH!
Ever since getting up, I’ve basically been on the climb. I started climbing as soon as my feet hit the floor, was around 13 mmol/L by noon, and basically hovered there all afternoon. The type of day where I take a 3 unit correction and my BG doesn’t budge and I wonder where that insulin went. Correcting throughout the morning and afternoon did basically nothing.
Tonight I was literally like, “Oh, who cares. I’m high already, I’m going to eat some carbs!” Bought some cereal.
Yeeaahhh. Bad idea.
I bolused a lot of insulin, ate my cereal, and fell asleep.
Woke up to find my Dexcom saying HIGH for the past two hours.
Tested on my meter and got some weird error message I couldn’t see. Tested again and got another weird error message I couldn’t see. Looked at it under my video magnifier. “Blood sugar over 33.3 mmol/L.” (For mg/dl folks, that’s over 600 mg/dl!)
Ummmm. Oops. I haven’t been that high in years! 
Time for some major correcting. I think I’ll be doing 14 units of Tresiba tonight. And no more cereal for me!!!
2 Likes
Oh, you’re not alone. I think there’s such a thing as a rage bolus, but certainly such a thing as rage carb consumption too! Hopefully it was damn tasty cereal.
And it’s just one day and you’re going to share that box with someone else, and knock those hormones in the butt with larger boluses.
I am sorry though because I’m guessing you feel crummy. 
1 Like
Man, today has been more of the same. I came down last night and hovered around 10 mmol/L for the rest of the night. Haven’t been below 10 mmol/L all day. Mostly ranged between 11-15 mmol/L. At around 3:00 I began rising dramatically. Currently sitting at 31.2 mmol/L with my Dexcom unable to read anything again.
I took 14 units of Tresiba last night and this morning. I’m very tempted to just up the dose dramatically to like 20/20 units, since I haven’t been even close to in range and have had such dramatic highs over the past few days. I’m pretty sure I’ve seen more Dexcom "HIGH"s in the past month than I have in the previous three years since getting it. 
2 Likes
That’s really high… I’m sorry it seems to not be working well for you
1 Like