So, after we washed Samson’s old Medtronic pump, we switched to Omnipod and Loop. We’re having a lot of frustrations with it.
First is that the plastic cannula insertion seems more painful for Samson. He insists on us doing it while he sleeps.
The second, and biggest issue, is that it feels like around day 2 or 3, he will sometimes (not always) have these crazy, unexplained highs. They’re absolutely brutal and are decimating his average BG/A1C (currently estimated at 6.9 ) . Because we have no idea whether insulin is being delivered, we give him a huge amount of insulin and then he may tank and be low – after hours. His normal TDD is like 12 units, but you can see on these days he’s getting way more than that. I suppose these could be hormone highs or something but it’s odd how they all seem to happen on day three.
Here’s a horrible example from Friday night. He went so high it simply said “HI” on his blood glucose meter (so if it’s Freestyle Lite it’s more than 500 or 600 I think?) Then he went as low as 36 afterwards. I injected 4 units that aren’t included in this total of 22.4 units.He has no symptoms of illness or being unwell in any way:
And here’s last night – also at the tail end of the pod’s life. Again, this actually is an underestimate of how much insulin he ostensibly got because I injected 2 units and didn’t record them. I didn’t wait till as long before I switched to a pen injection, so he didn’t go as high, but it still took a prodigious amount of insulin to bring him down:
I guess what I’m wondering is if there’s any way to predict this is what’s happening before it gets to this crazy level. Samson hates injections, so we avoid it until it’s necessary. And changing out his sites too early could wind up meaning we don’t have enough insulin at the end of the month; he’s prescribed 25 units per day.
Or is there any way to fix this problem so it doesn’t happen in the first place? Are there certain areas of the body that seem to have better longevity with the Omnipod? We are used to Looping and don’t want to stop – we can’t switch to the T-slim because Samson’s too light for Control IQ, and would never want to switch to one of the Medtronic hybrid closed loop systems. So other than resurrecting his waterlogged, ancient Medtronic pump to Loop, I’m not sure what we can do and would really like to fix this problem so it isn’t wrecking his A1C and subjecting him to awful nights.