Hi everyone, first a little about me as I’m new here. I’m a 38 year old type 1 living in Canada, diagnosed at age 3 and taking daily injections ever since. My drug plan at work recently started covering insulin pumps and the Freestyle Libre so of course I was excited to get set up with both.
The Libre was very easy, here in Canada my pharmacist was able to write the prescription and same day I was using that system.
The move to an insulin pump has been a bit more frustrating and I’m interested to hear others’ experiences getting set up. I was drawn to the OmniPod as I have no interest in tubes etc, just not compatible with my life. I tried the sample pod, found I had no issue with it so decided to go with the OmniPod. The OmniPod staff were great at getting the required paperwork signed by my doctor, getting insurance approvals etc and within 3 weeks or so I was approved and my pump purchase was all set. This is where things start to get frustrating.
Speaking with my doctor, he indicated that in his experience the various pump company trainers would handle my transition from injections, but that he could refer me to a local Diabetes Education Centre if required. After speaking with their training specialist she really tried to push me towards the Diabetes Education Centre rather than use their in-house resources. My concern was lead time to get myself into an education centre since i wasn’t actively working with one so i indicated my preference was to work directly with omnipod.
After some back and forth, she asked if I had ever been trained in carb counting which i hadn’t. Carb counting wasn’t really a thing when I was learning to control my condition. I’m always aware of carb contents, complexity of the carbs etc and use those to inform my dosing, but I’ve never had someone sit down and calculate my carb:insulin ratios, correction ratios etc. I’m very aware of how my body processes things and how to manage my sugar.
At this point she told me her trainers would not work with me until I had some formal training in carb counting. So this meant calling my doctor, asking for a referral to an education centre, and now sitting and waiting for word on when I can go in.
In the meantime my pump starter kit has arrived and it’s just sitting on my kitchen counter useless, burning up warranty period and not doing me any good. My biggest concern is that in our public health system here, referrals can often take months, which is months longer than I’m willing to wait.
So I’m curious if others have run into a similar situation, and what you did about it? I can’t accept that omnipod has a team of diabetes educators and they can’t/won’t do a bit of carb counting 101 with me. Omnipod sure was fast to get my pod purchased and delivered, but seem far less interested in helping me now. I’ve read most of the manual and it’s really not that complicated.
I was on a real emotional high when i got approved, dreaming of taking that last injection before moving to the pump after 35 years of sticking myself. Now I’m dragging low with how this has turned out and the uncertainty of when I’ll be able to start pumping.
Sorry this turned half into a rant as i started typing it but I’m at a high point of frustration…i figure people on a forum like this can understand better than most!
Thanks for any input/advice!
Dave