Hello all,
Kiddo was diagnosed T1D about 6 months ago at 13. We’re still coming to terms with it. Without going into too much personal detail for him, he’s dealt with other mental and physical health issues all his life including surgery at a young age, another autoimmune condition (thankfully symptom free now) and significant ADHD/anxiety/depression. This diagnosis was a real kick in the gut for a kid who was already struggling.
I’m reaching out for the collective wisdom of the community on how to support him and give him agency in his choices. He is interested in choosing an insulin pump and we’ve tentatively narrowed it down to the T-Slim or the Mobi, mainly due to the Control IQ algorithm. The threads about this seem to be a few years old so I hope bringing this back up is OK.
Tslim - I like:
- Can still use if (when) he loses his phone or it’s out of battery, or if his phone is in downtime or confiscated (it’s a trigger to stop phone time for nonpreferred but necessary life tasks)
- Hopefully harder to lose than a phone b/c it’s connected to his body with a tube. He would misplace his own head if it wasn’t stuck on.
Don’t like:
- Bigger, bulkier, harder to play basketball with - what if the tubing snags or is ripped off? What if he loses the tslim itself?
Mobi - we like:
- smaller, maybe tubeless soon
- shorter tube, less likely to be caught/snagged?
- Attached to his body so he can’t lose it
Don’t like
- phone required - phone permissions are a hot button issue and family link controls don’t make it easy to navigate this. Also, he’s going to misplace his phone or the battery will be dead. We have a separate standalone receiver for the Dexcom G7 for this purpose, but what would he do to control the Mobi?
Another piece that I’m trying to find more information on is just how much executive function is needed for each approach. Currently we’re not logging anything in the Dexcom app because he has enough executive function to calculate carbs for his meals/snacks but just can’t take the extra steps to log his carbs and insulin (and doesn’t want me hovering over him to ask “how many carbs was that? What did you dose? Did you correct?”). How easy is the Tslim interface or Mobi app to use, and do either of them have a lower barrier / less clicking?
Thanks in advance for any thoughts.
