Has anyone here had experiences with pre type1 diabetes? My husband and FIL both have type 1. We found out that my 17 year old son has a high HbA1c of 5.9 and will go over 200 sometimes with very high carb meals. His fasting is normal. I did an at home OGTT with 75g of glucose and he was at 200 at 2 hours (so technically that makes him a diabetic?), but he was also doing low carb for 2 days before the OGTT. We are waiting on antibody and c peptide results from the lab.
If we stay under 30 grams of carbs per meal, his glucose levels will never even go above 115 during or after a meal. And they stay in the 60s-80s through the day (the low lows are also concerning and a sign of pre-type 1 I think) Fasting and overnight will be in the 70s (we have him hooked up to a Dexcom for now) But we just started doing that after finding out his high HbA1c, he was frequently having very high carb meals before than and we weren’t testing.
But eventual diagnosis seems inevitable. The endocrinologist wants to see him in 3 months to re-check his hba1c. I was looking into the teplizumab trial once his antibody test results come in to try and delay getting on insulin as much as possible. We will stay under 75-100 grams of carbs per day as he does really well on that, but how long will this last? It’s very worrying having this hanging over our heads. I had also enrolled DS in Trialnet when he was 5, but opted out of knowing the results because there were no treatments and knowing he was antibody positive would result in anxiety. I wonder if they still have those results?