@andrea8, Sorry if my cost question was already asked and answered. Thank-you for patiently answering for me. It’s too bad that Medicare Part B DME is not being offered but I’m glad that your Part D coverage is making it affordable to you.
Does that $60/month cover your ongoing supply expense or just the insulin pump itself? I’ve used Loop DIY for nine years now and it certainly has stood the test of time. I hope that Twiist meets all your needs. I will be interested to follow your experience as it unfolds. Good luck!
What is loop DIY I’ve read about it before it does it have a large meter on.is it a square. What has your A1c been with it? That’s $60 is what they call a refill kit which has everything I need for 10 pump changes. How often do you have to change your pump accessories?
So, that $60/month is to cover your ongoing supply cost and the initial cost of Twiist was covered 100% by your Part D insurance. Am I missing something here?
Loop DIY (do it yourself) is an automated insulin dosing system comprised of a compatible insulin pump, CGM, and an algorithm residing on an iPhone app. I use an older Medtronic pump, Minimed 722, but the most common pump used is the Omnipod Dash. This system is not FDA approved and requires the user to accept all responsibility for running it. There are other DIY automated systems such as Trio, CamAPS, and AndroidAPS.
I change my infusion site every 3 days and the insulin reservoir about every 12 days. The pump battery lasts about 2-3 weeks. I typically change my G6 CGM every 10 days.
Since I started this system in November 2016 my A1c has averaged 5.5% and ranged from 4.8-6.2%. My last A1c was 5.2%. I’ve found that while the automated insulin dosing system is important, combining it with a compatible way of eating, sleeping, exercise and stress management is crucial for best outcomes.
I’ve heard some complaints about the Omnipod on different diabetic websites about it not being trustworthy too many highs on those not being alerted not sure if true. How big is the thing you wear on your body the pump with DIY, but you do use your iPhone like I do. My A1c is not as low and I’m not sure if the pump is working as well as it could because I’m not getting any monitoring by an Endo.
@andrea8 Loop DIY is an AID built for Apple iPhone users that takes CGM output, puts it thru an algorithm and uses Bluetooth signals to issues instructions for insulin pumps what to dose to maintain a particular BG level. It will also calculate bolus amounts for meals and snacks based on user input of carbs and type (fast, medium, slow). If you’re interested, you can look at loop.zulipchat.com, https://www.loopandlearn.org, or various groups on Facebook like https://www.facebook.com/groups/TheLoopedGroup. It’s a DIY system, meaning you’re supposed to build it yourself using either a Mac with Xcode or you can build using Github (https://github.com) using a computer, pad, or cell phone. You do not have to do any programming of your own, but you do have to be able to follow instructions; even then, there are many folks out there who can guide you along. I started out with Loop (a bit more carb centric) and stayed with it for about a year, but have moved to Trio (a bit more BG centric) using a different algorithm. If you’re an Android user, there are multiple similar DIY systems like AAPS you can try. A version of Loop that was approved by the FDA is what drives the Twist system.