I'm Twiisting!

[jbowler]

Tanita Tikaram - Twist In My Sobriety (Official Video)

[jbowler]

@bpollina

Not sure how many channels, but I know you can use both the Eversense 365 aop as well as Twiist at the same time.

So at least two, like the G6; the twiist pump connects and either (I assume) the Eversense app or ESEL; my belief is that Android makes it difficult for more than one app to directly connect to the same device at the same time (maybe that is inherent in Bluetooth.)

@bpollina

Twiist uploads everything to Tidepool, but it is delayed. Eversense uses a private cloud only and can only otherwise write to Apple Health, but that has a 3 hour delay.

Yeah, the delay updating health apps (same thing on Android) is really annoying. xDrip+ can connect to the Eversense “cloud” and retrieve information to fill in missed readings.

@bpollina

I came from the Omnipod Dash, which I absolutely LOVED as it was tubeless. The only problem I had with that is that it only holds 200 units of insulin, so I was changing it every 40 hours or so, so I had to have my endo write for changes daily.

IRC there was discussion either here or on TuD about using stronger insulin in the 'pod. I found this easily:

https://diabetesjournals.org/diabetes/article/73/Supplement_1/955-P/156414/955-P-Effective-Use-of-U-200-Insulin-in-OmniPod-5

I don’t know what strength was discussed here/TuD but 500IU/ml must be possible too. In your case 2x40 hours would run to the end of the Omnipod 80 hour hard limit and the article above suggests the approach has merits beyond simple convenience. Makes sense to me, in fact injecting physically smaller volumes for the same amount of insulin really should be investigated scientifically.

Thanks for the info on the infusion sets; my insurance is separating “refill kits” from “refill+infusion”, that’s a bit of a mystery to me as I’ve never used an infusion set! Yeah, tubes and I get all mixed up, but saving all that money…

@bpollina

They use Preccription vs DME side on purpose because that way there is no lock in period, and nothing has to be proven that you normally have to do to get a pump.

I believe all the “proof” requirements for insulin pumps were dropped last year, or maybe before. This document is from February 2025:

mln7674574-medicare-coverage-diabetes-supplies.pdf

Part B covers these if the patient has diabetes:
● Blood glucose self-testing equipment and supplies
● Durable insulin pumps and the insulin used in those pumps
● Therapeutic shoes and inserts

Some conditions remain for CGMs, which fit under the first item (spelling errors courtesy of the CMS; someone obviously used a smell checker):

Part B covers continuous glucose monitors (CGMs), supplies, and accessories for all diabetes
patients who have:
● A CGM prescribed by following its FDA indications for use
● Met 1 of the following criteria:
● The patient is insulin-treated
● The patient has a history of problematic hypoglycemia
● A visit with their doctor 6 months before ordering the CGM to evaluate diabetes control and
confirm the above criteria
The covered CGM supplies include CGM sensors and transmitters.

Yeah, that’s a summary from early 2025 but it’s broadly consistent with the stuff I and @chris found a while back when I went on to Medicare in 2025 (I think that was on TuD, so I may have got the wrong Chris…)

I find it very easy to get mixed up between the pump and CGM rules but ATM it just seems to come down to IDD. CGMs explicitly require IDD or chronic hypoglycaemia (hyperinsulinaemia for non-IDDs). Pumps, what doc would prescribe an insulin pump to a patient not taking insulin???

[bpollina]

Took you long enough!

[bpollina]

You guys on Medicare are not the only ones having issues.

I think the reason why they chose prescription side vs DME side was less hassle and paperwork and no lock in. I don’ thtink they realized how many people were on Medicare that want it and need it to be available on the DME side. Hopefully they will get that all figured out soon.

[bpollina]

so I paid for a hosted nightscout called nightscoutpro.com that worked great with DIY Loop.

Have been having issues getting it to work with Twiist. Twiist has a private cloud that then goes to Tidepool but no way to write directly to nightscout.

Well, the owner figured out how to tap into the Eversense app called insight that is normally for following someone on another phone with about a 5-10 min delay that he could use.

Now I’m able to use that to pull my info into nightscout and keep a browser open at work to watch my numbers without having to look at my phone or watch. I’m loving it!

[ClaudnDaye]

My NS is up on a large monitor in my office all day. And at night, it’s on my TV. Love NS display!!!

[TomH]

I understand a parent’s desire to monitor their child’s status regularly, I know I would! That said, a large monitor/TV may be overdoing it just a tad (thats about 500 million miles in space terms gotta love Airplane II!), but that’s a personal decision, not a critique, I’d probably do similar if I was @ClaudnDaye and my daughter were @Liam-M(BTW, she’s 43 now, married, doesn’t live with us, and has a kid of her own). For those looking for an alternative, my I nightstand has a triple charger (phone, watch, and earbuds) that stands up the phone for ready visibility, permits turning it sideways so larger numbers/text are displayed (hey! I’m old and wear glasses, and note that only some apps support this). I set the display to never go off or let Sugarmate or LoopFollow do this for me. It displays my Trio app, Sugarmate, or LoopFollow constantly (I keep changing my mind about which app). The iPhone auto-dim’s the screen with the external lighting, but allows checking my numbers or alarms readily (like when my pump unexpectedly ran out of insulin last night). I am a bit concerned about image burn in (don’t think that’s real concern with OLED which I think I have, but I’m sure someone here will let me know!), but that’s an acceptable risk to me. It’s a bit different from @ClaudnDaye, but it works for me. Just an alternative for those looking at the options! Now, back to the discussion of Twiist!

[ClaudnDaye]

I have two methods for nighttime. One is the TV that displays the BGs until I’m asleep. TV is set to time out and go to sleep after a couple hours and then I depend on SugarPixel. It is incredible as serving as a handy display but more importantly, alerts that wake me up.

[bpollina]

Wasn’t watching for the exact day, but I’m now in the WEEKLY calibration stage that will continue for the rest of the 365 day wear on the Eversense 365.

So now all I have to do maintenance wise is:

• Charge the battery ideally while in the shower daily (5 min charge) but can wait up to 48 hours
• Apply a new double faced tape when re-applying. You get a choice of clear, which is more discrete but less sticky or white which is more sticky. They give you both.

I absolutely LOVE the Eversense 365, so at this point if you are considering the Twiist, I’d not even go with the Libre 3+ and do the E365.

I hear that they are in contract negotiations with Dexcom G7 but am not sure if it is 10 or 15 day wear and how much longer that will take.

Also, Nightscoutpro.com has now figured out a better way to get the data reliably. The Twiist has a follow app called Insight which poles every 5 min. You can input that in and works fairly reliably, so data will only be 5-10 min behind vs all over the place with Tidepool.

I’ve also found a great tool called Sweet Dreams that is wonderful for getting the data to your watch reliably as well as to carplay. It’s $20/year, but if you ask suport really nicely, they can work out a lifetime license privately for $40-50. I’m working on doing that now. There’s a 7 day trial for pro or some just use the basics. I like that pro puts the numbers on your dynamic island as well as lock screen. Well worth the money in my opinion.

Once the data is in nightscout, you can use whatever reads from nightscout, so Sugar Pixel, Sugarmate, Glowcose, etc should all work.

[bpollina]

Today’s day 21 since insertion, so time for weekly calibration

E365: 138

Finger SticK: 131

Not bad!

Still loving the E365 and Twiist pump!

Since I last wrote, I do have one anomoly to report:

One day about 12 hours into wearing th E365 and after working out, I was a bit oily.

I went to change shirts, and it pulled the E365 off, but the adhesive strip stayed with the E365, so at that point, I had to use an adhesive strip early. They plan on days like this, though, and do give you some extras.