I'm Twiisting!

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So at least two, like the G6; the twiist pump connects and either (I assume) the Eversense app or ESEL; my belief is that Android makes it difficult for more than one app to directly connect to the same device at the same time (maybe that is inherent in Bluetooth.)

Yeah, the delay updating health apps (same thing on Android) is really annoying. xDrip+ can connect to the Eversense “cloud” and retrieve information to fill in missed readings.

IRC there was discussion either here or on TuD about using stronger insulin in the 'pod. I found this easily:

https://diabetesjournals.org/diabetes/article/73/Supplement_1/955-P/156414/955-P-Effective-Use-of-U-200-Insulin-in-OmniPod-5

I don’t know what strength was discussed here/TuD but 500IU/ml must be possible too. In your case 2x40 hours would run to the end of the Omnipod 80 hour hard limit and the article above suggests the approach has merits beyond simple convenience. Makes sense to me, in fact injecting physically smaller volumes for the same amount of insulin really should be investigated scientifically.

Thanks for the info on the infusion sets; my insurance is separating “refill kits” from “refill+infusion”, that’s a bit of a mystery to me as I’ve never used an infusion set! Yeah, tubes and I get all mixed up, but saving all that money…

I believe all the “proof” requirements for insulin pumps were dropped last year, or maybe before. This document is from February 2025:

Part B covers these if the patient has diabetes:
● Blood glucose self-testing equipment and supplies
● Durable insulin pumps and the insulin used in those pumps
● Therapeutic shoes and inserts

Some conditions remain for CGMs, which fit under the first item (spelling errors courtesy of the CMS; someone obviously used a smell checker):

Part B covers continuous glucose monitors (CGMs), supplies, and accessories for all diabetes
patients who have:
● A CGM prescribed by following its FDA indications for use
● Met 1 of the following criteria:
● The patient is insulin-treated
● The patient has a history of problematic hypoglycemia
● A visit with their doctor 6 months before ordering the CGM to evaluate diabetes control and
confirm the above criteria
The covered CGM supplies include CGM sensors and transmitters.

Yeah, that’s a summary from early 2025 but it’s broadly consistent with the stuff I and @chris found a while back when I went on to Medicare in 2025 (I think that was on TuD, so I may have got the wrong Chris…)

I find it very easy to get mixed up between the pump and CGM rules but ATM it just seems to come down to IDD. CGMs explicitly require IDD or chronic hypoglycaemia (hyperinsulinaemia for non-IDDs). Pumps, what doc would prescribe an insulin pump to a patient not taking insulin???

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Took you long enough! :slight_smile:

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You guys on Medicare are not the only ones having issues.

I think the reason why they chose prescription side vs DME side was less hassle and paperwork and no lock in. I don’ thtink they realized how many people were on Medicare that want it and need it to be available on the DME side. Hopefully they will get that all figured out soon.

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so I paid for a hosted nightscout called nightscoutpro.com that worked great with DIY Loop.

Have been having issues getting it to work with Twiist. Twiist has a private cloud that then goes to Tidepool but no way to write directly to nightscout.

Well, the owner figured out how to tap into the Eversense app called insight that is normally for following someone on another phone with about a 5-10 min delay that he could use.

Now I’m able to use that to pull my info into nightscout and keep a browser open at work to watch my numbers without having to look at my phone or watch. I’m loving it!

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My NS is up on a large monitor in my office all day. And at night, it’s on my TV. Love NS display!!!

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I understand a parent’s desire to monitor their child’s status regularly, I know I would! That said, a large monitor/TV may be overdoing it just a tad (thats about 500 million miles in space terms gotta love Airplane II!), but that’s a personal decision, not a critique, I’d probably do similar if I was @ClaudnDaye and my daughter were @Liam-M(BTW, she’s 43 now, married, doesn’t live with us, and has a kid of her own). For those looking for an alternative, my I nightstand has a triple charger (phone, watch, and earbuds) that stands up the phone for ready visibility, permits turning it sideways so larger numbers/text are displayed (hey! I’m old and wear glasses, and note that only some apps support this). I set the display to never go off or let Sugarmate or LoopFollow do this for me. It displays my Trio app, Sugarmate, or LoopFollow constantly (I keep changing my mind about which app). The iPhone auto-dim’s the screen with the external lighting, but allows checking my numbers or alarms readily (like when my pump unexpectedly ran out of insulin last night). I am a bit concerned about image burn in (don’t think that’s real concern with OLED which I think I have, but I’m sure someone here will let me know!), but that’s an acceptable risk to me. It’s a bit different from @ClaudnDaye, but it works for me. Just an alternative for those looking at the options! Now, back to the discussion of Twiist!

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I have two methods for nighttime. One is the TV that displays the BGs until I’m asleep. TV is set to time out and go to sleep after a couple hours and then I depend on SugarPixel. It is incredible as serving as a handy display but more importantly, alerts that wake me up.

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Wasn’t watching for the exact day, but I’m now in the WEEKLY calibration stage that will continue for the rest of the 365 day wear on the Eversense 365.

So now all I have to do maintenance wise is:

  • Charge the battery ideally while in the shower daily (5 min charge) but can wait up to 48 hours
  • Apply a new double faced tape when re-applying. You get a choice of clear, which is more discrete but less sticky or white which is more sticky. They give you both.

I absolutely LOVE the Eversense 365, so at this point if you are considering the Twiist, I’d not even go with the Libre 3+ and do the E365.

I hear that they are in contract negotiations with Dexcom G7 but am not sure if it is 10 or 15 day wear and how much longer that will take.

Also, Nightscoutpro.com has now figured out a better way to get the data reliably. The Twiist has a follow app called Insight which poles every 5 min. You can input that in and works fairly reliably, so data will only be 5-10 min behind vs all over the place with Tidepool.

I’ve also found a great tool called Sweet Dreams that is wonderful for getting the data to your watch reliably as well as to carplay. It’s $20/year, but if you ask suport really nicely, they can work out a lifetime license privately for $40-50. I’m working on doing that now. There’s a 7 day trial for pro or some just use the basics. I like that pro puts the numbers on your dynamic island as well as lock screen. Well worth the money in my opinion.

Once the data is in nightscout, you can use whatever reads from nightscout, so Sugar Pixel, Sugarmate, Glowcose, etc should all work.

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Today’s day 21 since insertion, so time for weekly calibration

E365: 138

Finger SticK: 131

Not bad!

Still loving the E365 and Twiist pump!

Since I last wrote, I do have one anomoly to report:

One day about 12 hours into wearing th E365 and after working out, I was a bit oily.

I went to change shirts, and it pulled the E365 off, but the adhesive strip stayed with the E365, so at that point, I had to use an adhesive strip early. They plan on days like this, though, and do give you some extras.

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Everything is still going great.

Had to calibrate the other day but I forgot and was eating, so I hit “decline” and waited for when the arrow was nice and steady as was the graph.

When I took the finger stick, it was 1 number off! Totally awesome!

Nightscout has been perfect since it started pulling from Eversense Insight. Typically about 5 min behind.

Sweet dreams has been great as well. Great app. Well worth the money.

If anyone has any questions, please LMK.

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Still loving everything.

If anyone wants to use Sweet Dreams and would rather have a lifetime license, send an email to support and they will work with you. For me they did a lifetime license for 2 years for $40 but sometimes they do $50. They said they don’t like to do lifetimes because things change so much and they are not sure they can always support new stuff 3-5 years down the road and don’t want people to be upset.

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My Twiist kit costs $582 a month and I pay $60 copay insurance. My supplemental coverage (UHC Empire plan) pays for the Twiist stuff entirely. I would not have tried it had it not been approved for coverage. I have been using it since 10/25 and have had some problems….highs that wouldn’t go down and a few lows…..some while sleeping (43) which i slept thru and lived. I would not have tried it had I not had an iPhone and already using a Libre 3 plus CGM. My overall blood sugar has been much lower overall….up to 70% in target range. My CMI (like A1C) has been 7.3 as opposed to pushing 10.0 before pump. I still am on my own as I have never talked to endo since pump except when he called me to go over my settings when appt canceled due to weather. No appt. known since then. Have a manual and was “trained” quickly by the Twiist rep who pronounced me “sufficiently trained” and told me to contact Twiist customer service. I have and have been on phone an hour or more each time working out problems. The Twiist reps have been very helpful and patient with their time. They even referred me to an Abbott Libre person when my CGM kept reading over 400 when my BG should have been coming down per Twiist. Anyways, overall improvement with pump.

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Glad to hear that going on the Twiist has made such a big difference in your control. Was the low of 43 on the first day of a new sensor? I sometiimes get readings like that on the first day of my G6 and always confirm with a finger stick which has always shown that things aren’t quite so dire.

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Don’t think that lol his first day of sensor. I slept right through it. I only saw it on my graph. I wasn’t too impressed with the twist because I had a high that wouldn’t come down and then I had those two Lowe’s but I didn’t know cause I was sleeping right through it but twisted his month-to-month so you can choose not to re-order and I contemplated that. The twist wraps are very good about problems and send free replacements of parts of the twist system when you’ve had some problem like I did with the infusion set i.e. needles.

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Ah, I hadn’t grokked your previous posts. So Medicare did (does) cover it under Part B, despite all the hoopla on the Twiist web site, and of course that means the TCO with a reasonable supplement (I have Plan G) is $257, or whatever the 2026 number is before the supplement kicks in for the rest.

Thanks for the correction; my bad I didn’t think it through; I was more interested in the Libre 3 at that point.

The medigap plan provider doesn’t matter; it’s the plan letter that matters. Even then it doesn’t affect coverage, it only affects payment. IRC Plan C (I think that’s still available) and Plan G cover 100% of the Plan B costs (20% of the total, after the Plan B “deductible” is met).

This has the attraction that insulin is also covered and, since everything goes on Part B, the CGM is too.

Well, that gives me something to talk to my endo about next appointment :slight_smile:

Yeah on the +/-20mg/dL; I’d never calibrate a Dexcom with such a small error!

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I talked to the twist rep today and they said it’s covered under MEDICARE part D Coverage whatever covers your prescription drugs. comes from a specialty pharmacy. I have good Part D coverage and don’t have Medicare advantage.

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@andrea8 If you don’t mind, can you tell us which Part D medicare insurer you use to get Twiist pump covered? And did you have to go through a Prior Authorization or appeal or similar process or was it easy to get covered? That would be really helpful, thanks!

I’ve been trying to figure out how to get the Twiist pump on Medicare and both Sequel salespeople and my Medicare Part D insurer say “Not covered”. I have Healthspring (new name in 2026 for Cigna pharmacy civerage). I am guessing I’ll have to switch to a new Part D plan in 2027 in order to get the Twiist pump covered.

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Did you have any out of pocket costs using your Medicare Part D insurance? Isn’t it usually an 80/20 percentage split?

I’m not sure if you can read my responses to other people or my postings but I said when I paid. They said the cost was $582 a month and I pay $60. Also been able to get like additional infusion set for free fromTwiist replacing defective ones.
They have to give you 10 new ones in the package and they do that if you have any issues with some of their products.

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