A1C Records

How far back have you kept note of your A1C results? I have a note consistently from 2008 - Current year.

I have a 2002 result, but then nothing until 2008 and nothing prior to 2002. I was consistently getting A1C’s since 2000, but just didn’t note them down.

I wish I had my results from a kid, but those are long gone.

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I record my A1c in my Google calendar now. I’ve got back to 2021, but don’t have an easily accessible record before then.

However, I remember my worst A1c. It was 10.2, when I was 1-2 years into diagnosis and going through a wishful “what if this isn’t real and I don’t actually have to do all this stuff” phase – my poor parents, oof. Conversely, as a teenager my endo was happy that I was below 7.5. How far below I don’t recall.

When I left my pediatric endo, he gave me a copy of 15 years of notes for my new endo. I think I might still have the stack at my parents’ house… (Looking through those notes, I finally learned how much doctors are observing! Our mood, our demeanor, our cleanliness… which totally make sense as markers of wellbeing.)

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I don’t remember when I got my first A1C. I know the test had come out before I was diagnosed, but it was not really mainstream practice yet. I remember going to the doctor’s appointments and my mom would bring my log book of all my pee tests.

This article references late 70’s early 80’s for when A1C tests became more common. That fits pretty well with my memory of it.

https://diabetesjournals.org/spectrum/article/21/2/78/70138/Diabetes-Technology-During-the-Past-30-Years-A-Lot

I looked at some of my records from my early A1C tests. I did not like the numbers! But we did the best we could back then, with the limits of what was available at the time. :man_shrugging:

I do remember one time I had something in the 7’s, and the doctor said we want to try to be in the 6’s.

It’s pretty funny, because if it was today and I had something in the 6’s, the doctor might actually say, “Oh no! That’s too low. The 7’s would be okay.:joy:

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I have been keeping a Google spreadsheet too! I tried to go back as far as I could find with my old records, which was 2001. I was diagnosed in 1995, so I don’t really know where I was from then until 2001. Really neat to see the trend. (Editing to add: the first section is high school years; the next section is grad school years; got a CGM in 2013 - THAT was the game-changer.)

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I have mine since 2010 or so, although I vaguely remember an earlier one than that being 5.3. Back then it was in the mid 5’s, bouncing around but on average steadily increasing until mid-2020, when it jumped up to 6.4. I struggled it down to 6 and 6.2 but it hit 6.6 in early 2022, so I was finally “officially” diabetic at that point.

Since starting insulin it’s been between 4.7 and 5.0. My endo and PA assure me I can relax on the control a bit, which is probably good advice. But also not easy when you have a … let’s say “controlling” personality :roll_eyes:

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I was getting them in the early 80’s. It took something like 3 weeks to get the results. We only referred to them as hemoglobin. It wasn’t until I was in collge when I first heard the term A1C…lol

Wish I could remember the results. Guess we didn’t focus on them much

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Wow…how cool is that.

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Very cool. My is just a list of dates and results.

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I had a few tests starting in 1986 but didn’t keep a record. With a change in doctors in 1994, I started writing them down – the first result was 9.3. I’ve had two or three tests a year since then, and I write them all down on the same sheet of paper. I made a graph in Word once but lost it in a computer meltdown.

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I think I was getting them in the UK before I left. As @eric observes they were new, ish, but after some years of avoiding the medics I finally got to an endo who, himself, was a T1D and did actually talk to me. He did the eyes; I came to the US with old-style 35mm negatives which I gave to my doc in the US and have subsequently been lost without trace. I’m sure he did HbA1C too; after all he is a T1D.

I don’t have those records, though I could probably get them as the UK developed a centralised record system when I was in my early 20’s.

On and off I’ve been doing them using Walmart’s Hba1C test kits; I only get a lab test every 6 months which means there is a big three month gap every time (more, in practice.) As with @allison the CGM, when it finally worked for me, made a big difference. AndroidAPS does too but I have to not take advantage of it by stuffing myself. This is difficult.

I just want two things in this context (two more than I will ever get), first to be able to do HbA1c consistently and have it entered into my medical records every month. Second to actually have medical records, wishful thinking there.

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All of you are an inspiration to me!

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