Ozempic and similar drugs for Type 1?

@Hammer

I am glad to get the news it is going well for you. I am interested in seeing how you progress…

My new Endo said I should start with a 20% reduction in TDD. I had seen what you intended to start with & thought 20 off wasn’t going to be enough. Thanks for your response. I look forward to getting any future updates.

Cheers :smiley:

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@Hammer and @SobeiT if you have any insights on insurance coverage of Ozempic or Mounjaro with type 1, I would be interested. Of course I would need to get to the point of even getting a prescription for a GLP-1 from my endo, but I’m trying to gather as much info as possible. @Hammer, any background on how you got the prescription from your endo? Thanks so much!

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My endo said that just having T1 on my charts would most likely get me denied. Even though I have and show T2 traits as well (pretty resistant from the start really.)
She ended up writing it for weight loss. That is how I got it.
I do have a few extra pounds, but I guess it was enough to work. I was actually surprised that I got it. She was fairly certain they wouldn’t let it through.

I maybe aggressive with my dosing, but only AFTER I do my homework. And this is an unknown for me, so I started off on a ‘safe’ level.
I will not change my numbers when I go to .5 dosage unless I see where I need to change (I most likely will, I am just more conifident in how it affects me now.)

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That’s super good news about being confident in it. Please let us know how the .5 dosage works out.

ATM I don’t have any more information other than what’s been stated here. If I get any new information I will certainly pass that on.

I am going to write my Retina Specialist this morning to ask him what he thinks of Ozempic or Mounjaro with my eye conditions.

Still very interested to hear what any current users have to say about any changes with use in their eye sight or even better if people could confirm they had no change.

I am a person that has no problem taking risks just would like to know if I can what the risk is going in.

Get so tried of all the Back Side covering about the side effects. I mean do they not know if it gives Diarrhea or Constipation…

C’mon Man :joy:

EDIT: My Retina Specialist just called & said I could use either Mounjaro or Ozempic I just need to let him know when I start so can get an appointment so I can be monitored. Now back to the Endo to see about getting it. :star_struck:

EDIT 2: & … this has come to a screeching halt :disappointed:

Retina Doc says yes. New Endo Doc says she’ll will write the script so I can try & get it but… there is no since in wasting the Doc’s time if I cant afford it.

MOUNJARO 2.5/0.5 INJ (Brand)
Store Pickup, 28-day supply
NDC 2150601 $263.01 / 2 injs

OZEMPIC 2MG/3ML PEN (Brand)
Store Pickup, 28-day supply
NDC: 169418113 $238.28 / 3 pens

The costs are not even correct for a months supply if the dose is taken once a week :disappointed_relieved:

Well I am not letting it go yet. Next year I will be eligible for Medicare supplemental / gap ins. I will check it out again then.

Note both Mounjaro & Ozempic have assistance programs. Just not available for Medicare clients.

That’s mine two cents :joy:

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First pen is good for 6 weeks (first 4 injections at .25, next two at .5)
Second pen good for 4 weeks at .5
So three pens would last 3 to 3 and half months, depending on what dosage you move up to.

And for argumentive sake, if you stay at the lower .25 dosage, each pen would last 2 months.

So your cost per month isn’t super bad, but not great either.

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@Hammer

Thanks for the heads up. Worth taking a closer look at. Thought the pen’s were kind of like my wife’s Orencia Rheumatoid Arthritis medicine. She injects a full pen once a week.

My bad :grin:

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I think the concern is that lowering BG/A1C too quickly can actually cause/worsen retinopathy. BUT improving your BG and A1C does absolutely improve eye health.

If you search past discussiins herein, slow and steady with this class of medications is best - both for acclimation (adjusting insulin rates, etc) and less severe side effects that do go away when the slower approach is taken.

So in your case, slower is better for several reasons!

You got quoted on 28day supply. Try a 90day supply/3months? That cost might be lower per pen. Also, taking the slower approach does save money, too.

I had to take a very, very slow approach (click method) and have never had to go beyond the “starter pen”! These are POWERFUL hormones, as is insulin.

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@MsCris

Thank you for the advise & the point in the right direction :smiley:

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Sorry to chime in late on this topic. I have been on Ozempic now for 1 yr and 9 months. I was always fighting my weight since high school, and yo-yoed up and down. At the 9 month mark I lost 32 lbs, but it was a very gradual loss. Needless to say I saw improvements in basal and insulin sensitivity, but was already well controlled with an A1c of 6.2 going down to 5.8. I ended up at a dose of 1 mg/wee, and had dose escalated based on tolerating side effects.

Insurance: Initially Medicare initially declined to cover it, but my endo justified it on the basis of improved cardiovascular outcomes. Wegovy is now approved for that indication.

Surgery: Surgeons want to have you discontinue the medication a week before surgery; they think that with the drugs for pain control will cause increased constipation. But, they do not realize that the half life is much longer, and there concern is theoretical, and I continued to take it. Just take more fiber to compensate for the pain meds.

At some point after you have been on Ozempic for some time your weight will stabilize, and level out at a new set point. But if you discontinue, your weight may increase. Don’t abruptly stop, gradually decrease allowing your body to acclimate.

Mike

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This topic is wild because while the research is exciting, the legal protections for off-label prescribing are a bit murky. I actually consulted Oberheiden P.C. to understand what kind of medical liability exists when you’re on an off-label regimen like this.

They’re pretty sharp on patient rights in complex medication cases, which was useful just to feel protected while trying something still on the edge of standard practice.

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I watched a great podcast today between Ginger Vieira (Diabetes Nerd, who I’ve linked before) and the current CMO for the ADA, past CMO for the Joslin Diabetes Clinic, Dr. Robert Gabbay. They discuss use of GLP-1s in type 1 and I was astonished by how positive “Dr. Bob” was about this use of treatment. Hopefully we are turning a corner in how practitioners are approaching GLP-1s for T1 and not far behind with insurance.

https://youtu.be/CMerai-XhPg

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Hi there John,

I used semaglutide (first thing I tried about 2 years ago) but am now using Ozempic for about 4 months. I did not notice any impacts on my blood sugar when using the semaglutide but I did find my numbers were a bit more steady with less extreme spikes. With Ozempic, it’s kinda the same thing. The only reason why I use it is to reap the benefits of helping my kidneys and heart stuff too.

Am not sure if it makes a big difference but all my indicators (A1C is 6.0 or 108 in American numbers) and all my kidney tests are just excellent. Am not sure if this is just because I’m able to manage my blood sugars extremely well and quite easily - I do eat low carb and low glycemic too.
It has not caused any problems at all for me but in Canada I have to pay $250 per every Ozempic order. And yes, that is a very big drag for my finances too.

Wish I could tell you more but that’s just what I’ve experienced. Another diabetic friend I had went on Ozempic and she found it made her blood sugar numbers basically perfect. But then she had some digestive issues so she had to stop using it.

Hope this helps even a little!
Sheryl

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