You might feel the vibrations, and you’ll always know where it is. I had problems with my Medtronic pump getting all tangled in blankets/pajamas or falling when I got up, so I bought one of these for when I slept. I don’t think it was exactly this one, but it was something similar.
That’s great! I’ll have to look into that. I currently just clip it on the front of my pajamas waistline, but it’s buried under the blankets. I wonder if something like this could be worn up higher… maybe around my head like @bkh suggested.
Thank you for this. I’ll go take a look and see if I could make that work!
That’s an excellent point… it really is. Highs have not been my problem over night, but I continue to really focus on them. Maybe I’ll try going back to the suspend before… You make a valid point.
I agree totally. Getting a CGM helped me see how high I went after stuffing my gob when I was low, and rebounds set up an endless cycle of highs and lows. I could see with my own eyes that just two glucose tabs could return me to a healthy level. I didn’t in fact need six and cookies and juice. Plus having the alarms set so I can take action long before I’m so low the brain just commands EAT SUGAR EAT SUGAR. Plus getting used to the idea that if I am going to overtreat – because why not? – I need to take insulin while I’m low.
This is advice I’ve heard for most of my 48 years of diabetes. Fix the lows first, then you can look at the other stuff.
It was me. But I sure hope I didn’t sound like I was saying life with diabetes should be all “la-la-la what a bee-yoo-tiful life this is, everything is perfect and not a worry at all.” In the situation you describe, I think many of us would be frustrated, or angry, or blaming. (Just last week I shouted “CAN I BE CURED, PLEASE, LIKE RIGHT NOW!”) But I was addressing what came across as a general attitude towards one’s diabetes. There’s a fellow over on TUD who is so thoroughly negative about his diabetes, he has not a single good thing to say about it and it is the cause of every misery in his life. Though he is an extreme example, that kind of thinking is not uncommon, I’ve discovered (over there).
Diabetes can be like baking. I’m a good baker, but things don’t always work out, even if the same recipe was perfect ten times before. In theory certain actions should have certain results. In practice it can seem like a crapshoot. But am I to blame? Is my diabetes to blame? Is there even blame to be assigned? Or do I just accept that this is just the way it goes?
Maybe this has come up in a thread I missed, but have you considered … getting rid of your pump? Getting another kind? Switching to MDI? Your pump seems to cause you more grief than anyone deserves, and it sounds like you have a lot on your plate as it is. Although it also sounds like you sort of like things that way. (I’m the polar opposite. The simpler, the better. I personally would not like your pump, the way it makes decisions without your involvement that take you places you don’t want to be, like too low or too high.) Sorry for rambling.
@Nickyghaleb
Another angle. What about the sensor?
You mentioned that the cgm system alerts you all night. What is the reason the system alerts? As somebody mentioned above, my opinion is there should be no alert which does not require intervention at nighttime. If you don’t need do to something then (at night) you don’t need to know about it. (Daytime lots of reasons you might want to know something even if no action AT THAT TIME is required.)
My suggestion in terms of alerts and alarms would be to objectively list out the reasons why the system alerts frequently at nighttime. List all the reasons whether or not you can or will change anything. Review the list and see if it is complete. Now, go through and consider whether anything can be done in terms of reducing nuisance nighttime alerts.
It’s 11:00 now, and I haven’t actually made any of the changes from earlier. I was excited about them… just didn’t get to them as planned. So I’m scrolling back through to see what I should try.
So I’m just throwing this one out there. If I currently have a suspend ON low at 50, which obviously isn’t great, and I’m trying to prioritize by sorting out the lows (but still hate the idea of huge rebounds because I’m stubborn), what do you think about a Suspend Before Low at 50… meaning it will probably suspend my at 70 or 80… and, with that lag, might hold me in suspend for a couple of hours.
[quote=“Beacher, post:85, topic:4654”]
Plus getting used to the idea that if I am going to overtreat – because why not? – I need to take insulin while I’m low .
I started doing this when I was pregnant because I was desperate to keep my BGs down. I thought it was a desperate times call for desperate actions kind of thing. It never occurred to me that it was just what normal diabetics did as a regular part of their good control.
When you don’t know what others do, you sometimes feel like a cutting edge genius…
I assume this is the Medtronic 640G you are using?
I am actually not familiar with that technology.
Does the insulin automatically resume and if so, what are the rules to allow it to resume? Will the suspend and resume happen automatically and silently at night with no user action require and no alerting required?
EDIT: What is your current Target Range for at night. (While sleeping.)
EDIT2: Assuming 640G. What are your “LOW LIMIT” settings. Value and time of day.
EDIT3: I am reading through the 640G manual. I read a lot of manuals. This is a horribly written manual.
And, see, the mistake I made was pulling in that comment as I sat venting about my disease. Real rookie move. What ACTUALLY has happened is that I’ve been thinking about your comment to the other thread since you posted it (and, EVERYDAY, planning on responding to it), but then there I was living it and couldn’t stop my fingers from going for the gold. I have been wanting to respond to it in a positive way. An informative way. I don’t know. I was looking forward to explaining how such a thing could be… then threw it all out the window in a vent. Even did a “here you go”, like I was calling you out. I wasn’t. I don’t know who the TUDiabetes character is, but I know I don’t want to BE that character. Sometimes I just get all steamed up… and… you’re familiar with I’m a Little Teapot? It comes to mind.
I get you, Beacher. I’ve had brain surgery, I’ve had melanoma, I have a kid on the spectrum, I have type 1 diabetes, experienced having a micropreemie, 3 scary pregnancies and scary deliveries, a bladder repair… 2 carpal tunnel releases… i’m searching (for effect)… neuropathy… and 98% of the time I think how lucky I am to be here kicking up a debate. The other 2% of the time I’m in here organizing my pity party and inviting you all. But maybe not you next time.
I didn’t really think that, but I’m kind of picturing it now… It’s kind of like a song, no?
You seem to have a lot of questions. Let me help. It’s your diabetes. Or could also be you. (I’m kidding… KIDDING…expressing humor in this manner is REALLY hard work).
I’m in for 3 more years. Why do you ask?
I have DRIVEN MYSELF into hypoglycemia with this response, and I need to get up for sugar. And then I see this:
Yes, but…
Yes, that… is it the 6 kittens I hope? I can explain how that happened.
I hope it’s the kittens because if not, I’m going to wonder what kind of messages I send around here… more than the obvious “long ones”. Beacher, whatever does that mean?? Why do you think I sort of “like things this way”?
This is going to be a bad answer because now my brain is mush from a low.
I’m on the 670G. I use manual mode, and I use the suspend on low feature. I will switch to the suspend before, which uses the guardian “trend” (which is the SG calibration factor) to determine how fast I’m dropping and to head it off with a suspend. Obviously.
It will resume on its own, yes, and it doesn’t require any action. However, it has kind of two stops… a 30 minute and a 2 hour. There’s nothing in between, I don’t think, unless you intervene. It gives you 30 minute to try to reconcile the problem, and if it has not been reconciled by that point, it catapults you, because that’s what it feels like right now, into the 2 hour suspend. If you happen to clear the ALERT that it is suspending you, you will hear nothing for the remainder of the 2 hours and only a little beep letting you know insulin has resumed. If you do NOT clear that alert (which I have 0 control over at night because i’m not in control of my alert-clearing behavior), it will continue to sound every couple of minutes until you do clear it. I think that’s the tone my family hears, and that could be husband or sons, and they usually come in and say, “mom, your pump is going off”, at which point, i clear. Sometimes i look. I think. And maybe sometimes i don’t and then get all angry at a later time when i realize i got the full 2 hours and now need to sort out insulin…
I should not be answering things right now. This feels like going on and on even to me.
It looks like my range is 80-130… which is strange because i thought it was 80-100. Have no idea how that happened.
And my low limit is 50. But if i change that… something feels really very much like i’m going to be mad all night if i do that.
Just now. As i wrote that. My pump suspended itself before low. I am a 76, and i’ve already had an applesauce. Wouldn’t be that big of a deal, but with the delay, it definitely wouldn’t right itself in time to meet that 30 minute deadline so i’d be locked in for 2 hours without insulin without needing it.
Do not stay up any longer or use up any more time of your night trying to do this with me. I just broke your only important rule and that was to prioritize. I’ve got my suspend before low on. That’s prioritizing. That’s what i’m doing tonight… you’ve been a huge help.
If this does not do the job and based on quickly skimming the 640G and the 670G manuals (I basically read manuals for my job. well more or less) then I would configure a LOW LIMIT specifically for nighttime which is the highest possible and use the suspend on low rather than the suspend before low and see how that works.
Perhaps the manual is poorly written (ha - I crack myself up) but the suspend before low potentially sounds like a broken algorithm. The suspend on low sounds much more solid. But maybe it was just my read of the manual in that regard.
Good night. Hope things start moving in a better direction for you.
@bkh and @Thomas, thank you for your help yesterday. I slept last night. I cleared out my “falling” alert and chose a suspend BEFORE low with a 50 for low. Don’t know that it’s the perfect setting, but it did suspend me for full 2 hours (which I fought myself off of overriding) early on. I probably rebounded higher than the guardian reflected, but it’s a start. I didn’t crash. I don’t think… can’t rwmember anymore. wanted to thank you guys though…
Looks like you’re making real progress in a good direction.
In that CGM graph, what’s the story for the quick fall 10pm to midnight, dropping from 200 to 50? Was it just a too-strong correction bolus? We can’t prevent that in real life, so the goal is to catch the fall sooner so it doesn’t get quite so low. For myself I’d have my low-alert at 80 so that if I hadn’t already noticed the fall, I’d be prompted to take some glucose to try to catch it before reaching the 50s.
How about the slower drop from 5am til 9:30 or so? Was that from basal or did you take a correction around 5am? If it’s from basal and you see that also in the graph for the previous night or tonight, that would be good reason to reduce the basal a little bit, starting around 3 or 3:30am.
So far so good. Keep on. And sleep 2 nights in a row would also be a plus, if that’s in the cards.