Hi I’m Shauna. I was dx in 1999.
I was living in Alice Springs in the Northern Territory, Australia. I was 22, and with hindsight I’d say I had symptoms for a considerably long time before diagnosis.
I often joke about a couple of things to do with my diagnosis, namely that I was diagnosed on April Fool’s Day! The other thing I joke about is the ‘trauma’ event that is often considered the catalyst in the lead up to diagnosis.
I went and saw Grinspoon (great Aussie band) at a local venue. It was the first all ages gig in town. The bouncers in their wisdom, had set up trestle tables on their sides as a barrier to the stage It was utter mayhem. No mosh pit etiquette at all! I was right at the front against a trestle table and there was a young teenage girl beside me. The crowd pushed us from behind. I actually knew the head bouncer, and after I had pulled the teenager in front of me to try to protect her from the crush, I got his attention to pull her out. After she had been pulled out, I got slammed into the table which broke in half!
The next day, I had a line bruise that went from hip bone to hip bone and my lower back and knees were also rather black and blue.
I call that the beginning of my D journey ( no proof whatsoever!!).
Lack of support and general understanding at the time by my HCP’s, has caused me to have many hospital admissions over the last 21 years. Fortunately I haven’t been for 8 years.
All DKA’s are serious, but my most serious was 10 years ago. It was when we learnt how profoundly stress affects me.
I had to be put into a coma, and I went into organ failure. My heart stopped, my lungs collapsed and my kidneys failed. I am extremely happy to say that I fortunately regained full function of my kidneys. I have just ‘celebrated’ what I call, my bucket birthday! The day I ‘kicked the bucket’.
After I came out of the coma, my friend and I had very deep, philosophical conversations and we started a ‘backwards bucket’ list.
After I left hospital and my endo and I realised that it stress was the most likely reason for being so ill, I was forced to medically retire, at the age of 34.
I have just started on a CGM, albeit reluctantly. I’m not sure how I feel about having things attached to me 24/7. I’m going to give it a really good go, because I absolutely understand the benefits of the data, but I’m still hesitant in how it makes me feel.