Recently because of endless experiences w/my idiot endo, I have been searching for another one. Having found it to be very difficult and challenging, when I asked an old endo who I trusted with my life ( sadly relocated to LA CA ) he told me that unfortunately many endos are not interested in treating T1Ds b/c we are too complex and we require so much more attention than T2s. That all in all T2s are more easily medicated and controlled with diet and exercise… whereas we T1s are all so different and there is not one specific formula to keep our BGs in check. Some of us are pumpers, some of us are on MDI. There are a gazillion types of insulins out there now to which we all have different responses. It is not in an endo’s financial interest to treat us. There are though, so many of us that find endo’s who DO treat us T1s. But it seems, IMHO, that they are stuck in their own old ways and do not entertain the many options, personalized, for healthy treatment.
As many of you know, I have been struggling with keeping my BGs healthy while swimming. My endo’s answer was that I was doing it all wrong. He firmly believed that what I was doing to manage my BGs was "absurd " and that I was following ill advice and would do more damage than good. Well I wore a FreeStyle Libre Pro sensor for 3 weeks in a row.When it came time to download the sensor it showed my A1c was 5.6% without lows or spikes. A basic flatline except a few highs (150) before I got into the pool. How could ANYONE dispute my method of management? Well this ding-a-ling endo did his best to argue with me and continued to disregard my decisions. F him.
Needless to say, I am scheduled to see another endo in October ( who was recommended by the endo who had moved to LA ). How can you argue with success??? (And yes,I know that I am quoting someotherFUD member.)
If I am wrong I am wrong, but then, wrong is working😎
I can’t believe he still found a problem with what you were doing even after having 3 weeks of data proving otherwise. What was his major malfunction with your flat line and tremendous exercise routine without lows?
This guy is also a T1D who wears a pump and has been D since college. I’d love to know his A1c!!!
What a bafoon. But the real bafoon is me for continuing to see him; but I owe most of my knowledge to FUD site b/c it wasn’t until I joined this site that I began to really learn more about my D and how to live w/ it. I have learned how to ask questions and how to take risks and experiment till I find what works for me; even if it is a solution that is “outside the box”. My endo doesn’t understand why I bolus for proteins. Thank God for my CDE, who sees all of us Ds as individuals with different needs. She doesn’t stereotype. She is always willing to listen and make educated suggestions. My endo barely listens before he tells me how right he is. He dismisses ideas without having considered them.
( I used to rarely see him b/c he always made me feel awful about myself and my D management; wasn’t he supposed to be helping me with that? Wasn’t that the point?)
This is how most of us have learned. I’d say some of the smartest diabetics in the nation, possibly in the world…are right here on FUD. I learn at least one thing new every day it seems.
I’m with you 100% FUD has an answer to every question I have ever asked. Members are supportive and caring. Not once has ANYONE made me feel anything but worthwhile and cared for. And I read it’s threads every day and learn answers to questions I never knew I even had.
I tell everyone I know. Even those who are not D. What could B better than finding something so wonderful that improves your life !!! And just the concept of living life UNLIMITED is AbFab😁
Ok, mine isn’t the endo himself (though him telling me he’d believe I had LADA if I’d presented in DKA, but since I didn’t, I must be pre-diabetic type 2, was pretty memorable), but whatever staff member called me about my test results. Preface this with - tests were done May 18th. I delivered my baby April 28th and was on a lower carb diet taking insulin (at a 1:5 insulin to carb ratio!) for every single thing I put in my mouth for the last 1/3 of my pregnancy. So staff member calls and says, “Everything looks good! Your A1c was 5.3, so no diabetes.” Of course it looked good; I had kept super tight control to protect my baby. And my GAD antibodies were >250 on those test results…
ugh. The gestational diabetes nurses and doctors are, IMO, the worst. Very moralistic and controlling during the pregnancy and then once the baby is out, you’re just not their problem and they don’t know or do anything for followup.
Sadly, this wasn’t a GD doc. I only saw a maternal fetal medicine specialist while pregnant (she pretty much let me manage things how I wanted, which was awesome once I figured out what she was doing, haha), and then found an endo recommended by a few t1 moms…needless to say, I went back to the DO who originally diagnosed me.
Yes! Very controlling, I had to eat certain foods at specific times and then after delivery - they did not do anything. I asked about follow up appointments - nope, not necessary was the response. It seemed odd to me.
“You don’t need to test after eating, everyone’s BG’s goes over 180 2 hours after eating.”
“You test too much, three times a day is enough.”
“No, you are an adult, you cannot be a Type 1 diabetic. It doesn’t matter, there is no way to differentiate a Type 1 vs a Type 2.”
The best and most dangerous one: My basal has dose has always been 25 units of Levemir. He breezed into the treatment room and told me he wanted me to increase it to 80 units once a day. He had no labs to look at and my records of BG checks were never examined.
I go in, politely nod my head, get my prescriptions and leave. I follow nothing he tells me to do. If I did, I believe I would be fertilizer for some very nice grass at the local cemetery.
My CDE also believes there is some kind of ideal basal/bolus ratio, though not 50/50 I think, rather 40/60 or something like that. I don’t understand where this idea comes from. Does my carb intake affect my basal needs? I eat ridiculous amounts of carbs and let’s say I reduced my carb intake by half, thereby drastically lowering the daily amount of bolus insulin, that would change my basal/bolus ratio too, right? I fail to see why it should not change and why a different ratio would be bad.
He practices as an Internal medicine doc, and yes he actually is an endo, but doesn’t list that in his office. He also has a pediatric clinic in another section of the city that he operates three afternoons a week. That is the most confusing thing to me. Shouldn’t he just pick one and run with it? Oh, and his actual dream is to be a Baptist Minister. I guess then after he kills us, he can officiate at the funeral (if we are Baptist…which I am not.)
Next visit you should have FUD open on your phone and show him a thread or two highlighting the crazy people you hang around. The ensuing heart attack may get him to stop practicing.
FUD has an answer to every question I have ever asked. Members are supportive and caring. Not once has ANYONE made me feel anything but worthwhile and cared for. And I read it’s threads every day and learn answers to questions I never knew I even had.
Of course it looked good; I had kept super tight control to protect my baby. And my GAD antibodies were >250 on those test results…