[FIRSTS] - Liam recognized his first low today, and our first "gusher" (01302018)

ClaudnDaye
Tue, 30 Jan 2018 18:33:57 +0000
Toddler

The purpose of this post is that I figured it would be nice for those caregivers to mark significant milestones for future reference by either us, or our kids. So today was two “firsts” for Liam and for us.

The First Gusher
It was time to change the CGM…although the receiver indicated the battery was end of life, this morning it indicated it had 12 more days before the battery would be dead. So, we took off the sensor/receiver from one bicep and installed it onto the other bicep. After getting everything fully completed, which included adding DexTape over the top, I attempted to “start sensor” and a message popped up saying the battery was too low, to use another Transmitter. This is a problem for us because we don’t have any extra transmitters. We called it in on the very first warning about low battery, which was 12 days ago…we JUST NOW got everything done (Endo sending prescription to Edgepark was the hold-up). Then, Erin noticed that his arm was pouring blood anyway…it was coming from the backside of the transmitter/sensor where they connect…and it was coming out in a steady pool, not a small amount. It was a gusher. So we very quickly ripped off (as fast as we could with the Unisolve) the DexTape, Sensor/Transmitter and I applied steady pressure for a minute or two, then the bleeding stopped…but I could see immediate bruising so I know we may not be able to use this site anyway for a few weeks. This is the first gusher we’ve ever had so I guess that’s good for 2 years? It sucked either way!

The first time Liam recognized he was LOW
After the above incident, we went on doing what we were doing…the last BG we took was 116 which was about 30 minutes prior to this incident. So, I’m in the kitchen cleaning and Liam comes to the kitchen and says “Papa, I’m feeling tired, I think I’m low.” I immediately checked his BG and he was…28. Crappy low, but VERY STOKED that he’s recognizing what lows feel like. This was the best…worst…news I’ve heard in a long time. As much as I never want to see Liam have a low BG, it did make me feel a lot better about the situation that he recognized it. Had he not told me, I wasn’t planning on checking him again for another 15 - 30 minutes. He might have saved his own life there…

To me, the ability to recognize lows and highs is the first step toward self-management! So, this is a happy day.

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