# What is the most frustrating thing about living with diabetes? **URL:** \ **Category:** Type 1 & LADA\ **Created:** [May 6, 2018, 12:53pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997 "2018-05-06T12:53:51Z")\ **Posts on this page:** 20\ **Page:** 3
**Author:** ![ClaudnDaye](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/claudndaye/32/5_2.png) [@ClaudnDaye](https://forum.fudiabetes.org/u/ClaudnDaye)\ **Post date:** [May 10, 2018, 4:13pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/41 "2018-05-10T16:13:27Z")
Checked Admin settings. Basic Users (Trust Level 1) can send and receive PM’s so not sure why you would not be seeing the link. Update: @Ubas, I just tested your account (saw things from your perspective) and the button is there. Just click on someone’s profile image and click the blue “Message” button. You won’t see the envelope if you click on your own profile image, but you do see it if you click on other users profile images. ---
**Author:** ![ClaudnDaye](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/claudndaye/32/5_2.png) [@ClaudnDaye](https://forum.fudiabetes.org/u/ClaudnDaye)\ **Post date:** [May 10, 2018, 5:12pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/42 "2018-05-10T17:12:25Z")
**Inexplicable lows.** When there’s no IOB, no basal and DIA has far exceeded it’s time that it should remain in the body. Whenever these three things are affirmative yet there still exists the requirement to treat lows or potential lows… And yet…it shouldn’t be happening, and shouldn’t be possible, because Insulin is required for lows. That is frustrating. **Oh, and POD ERRORS!!!** ---
**Author:** ![bkh](https://avatars.discourse-cdn.com/v4/letter/b/da6949/32.png) [@bkh](https://forum.fudiabetes.org/u/bkh)\ **Post date:** [May 10, 2018, 6:08pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/43 "2018-05-10T18:08:39Z")
Are you blocking any javascripts? I need to allow scripts from both [fudiabetes.org](http://fudiabetes.org) and [discourse-cdn-sjc2.com](http://discourse-cdn-sjc2.com) to get full site functionality in Firefox (with NoScript armor.) ---
**Author:** ![ClaudnDaye](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/claudndaye/32/5_2.png) [@ClaudnDaye](https://forum.fudiabetes.org/u/ClaudnDaye)\ **Post date:** [May 10, 2018, 6:18pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/44 "2018-05-10T18:18:04Z")
@Ubas issue has been resolved. ---
**Author:** ![Ubas](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/ubas/32/3669_2.png) [@Ubas](https://forum.fudiabetes.org/u/Ubas)\ **Post date:** [May 10, 2018, 6:45pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/45 "2018-05-10T18:45:09Z")
Thanks again. ---
**Author:** ![daisymae](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/daisymae/32/1199_2.png) [@daisymae](https://forum.fudiabetes.org/u/daisymae)\ **Post date:** [May 10, 2018, 6:58pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/46 "2018-05-10T18:58:30Z")
eric, you are **really on the lookout** for that G5! whatever are you going to do once the G6 comes out? 😉 your pal, DM ---
**Author:** ![Eric](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/eric/32/9209_2.png) [@Eric](https://forum.fudiabetes.org/u/Eric)\ **Post date:** [May 10, 2018, 7:15pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/47 "2018-05-10T19:15:24Z")
> [@ClaudnDaye](#): > > When there’s no IOB, no basal and DIA has far exceeded it’s time that it should remain in the body. Whenever these three things are affirmative yet there still exists the requirement to treat lows or potential lows… > > And yet…it shouldn’t be happening, and shouldn’t be possible, because Insulin is required for lows. I know most people focus on the nonfunctional beta cells as being the biggest part of diabetes, but for me the biggest issue has always been the alpha cells not responding to lows. That does seem like it is more problematic. Did you do a basal check with Liam? Seems like maybe you have some honeymoon going on. Maybe a C-pep would be informative too. ---
**Author:** ![ClaudnDaye](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/claudndaye/32/5_2.png) [@ClaudnDaye](https://forum.fudiabetes.org/u/ClaudnDaye)\ **Post date:** [May 10, 2018, 7:27pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/48 "2018-05-10T19:27:13Z")
No, haven’t been able too yet. Hope to do it this weekend. ---
**Author:** ![T1Allison](https://avatars.discourse-cdn.com/v4/letter/t/c77e96/32.png) [@T1Allison](https://forum.fudiabetes.org/u/T1Allison)\ **Post date:** [May 10, 2018, 7:37pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/49 "2018-05-10T19:37:34Z")
Schedule Pressure. When I have a full day of getting me and the kids out the door in the morning, getting to work, getting through traffic home, dinner, after-dinner activities (Little League right now), homework, showers, snack time, bedtime for the kids…trying to get them down by 8PM so that I can sit down with a snack to up my calorie count for the day but not have a lot of IOB at bedtime…that’s a lot to do. My kids are going to be illiterate because I’m diabetic. Story time is always the thing that gets axed off the nightly to-do list b/c I typically need to get them down so that I can focus on blood sugar one way or another, whether it’s snacking, an involved pod change (skin allergies), or going downstairs to my treadmill to take the edge off of a high. ---
**Author:** ![daisymae](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/daisymae/32/1199_2.png) [@daisymae](https://forum.fudiabetes.org/u/daisymae)\ **Post date:** [May 10, 2018, 8:03pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/50 "2018-05-10T20:03:26Z")
**frustrating ???** lets see where to begin… quick, unexpected changes in scheduling, getting a dual bolus to actually keep me in a target range with a nice sweet flat line, consequences of “over-eating,” my neuropathy in both my feet/legs and my hands, my 20+ finger sticks a day (oooh my poor finger tips). **(of course, i need to put a plug in for all of the amazing reasons i like to be a diabetic) :** 1. i have met all of you wonderful, supportive, encouraging, wise, experienced, sharing, compassionate people and cyber friends on this FUD site 😄 2. i have a lower A1c than my non-D husband (and i am assuming many others) 3. i am much healthier than most people i know 4. i have more empathy for other human beings; i am compassionate and open-minded 5. i recognize the differences between what is truly important and what is trivial and i honor that 6. i am proud of who i am and am more up to challenges than most people 7. (figure something else out and put it on my list 😉 ) ---
**Author:** ![docslotnick](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/docslotnick/32/75_2.png) [@docslotnick](https://forum.fudiabetes.org/u/docslotnick)\ **Post date:** [May 10, 2018, 9:14pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/51 "2018-05-10T21:14:57Z")
After a while you get to feel like you don’t have anything wrong with you, because you have good eating habits and live a healthy lifestyle. That being said it’s sometimes frustrating ( like the other night) when I succumb to the desire to be normal and eat a big hamburger, fries, a bowl of chili and half an order of fried pickle chips from Bubbas33. And paying for it with a night of 300 and 80 units of novolog. ---
**Author:** ![TiaG](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/tiag/32/594_2.png) [@TiaG](https://forum.fudiabetes.org/u/TiaG)\ **Post date:** [May 10, 2018, 10:38pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/52 "2018-05-10T22:38:19Z")
i mean honeymoon could certainly be a factor, but I think overestimating the functionality of a site is also a common problem. Maybe there’s a tiny bubble and the insulin was delivered 45 minutes after it should have been, etc… If there were lows after, say, 10 or 12 hours of no IOB I would totally say honeymoon was an issue. But lows when there is still some basal flowing and maybe 6 or 7 hours after the last bolus – i think malfunctioning or slightly suboptimal site is more likely. ---
**Author:** ![ClaudnDaye](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/claudndaye/32/5_2.png) [@ClaudnDaye](https://forum.fudiabetes.org/u/ClaudnDaye)\ **Post date:** [May 10, 2018, 10:54pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/53 "2018-05-10T22:54:32Z")
So, in our case (for the past few weeks), the basal gets turned off at around 9PM, his last meal is typically 6 or 7PM so that would be the last time he’s being bolused. Last night, his POD “expired” 11PM, but the basal was off at 9PM anyway. Then, between 3 and 7AM, I had to give him SIX glucose tablets to either keep him above low, or to bring him back up after he dropped low (twice last night, early morning he was at or slightly above 50). Before the past couple weeks, we’ve never seen anything like this. ---
**Author:** ![TiaG](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/tiag/32/594_2.png) [@TiaG](https://forum.fudiabetes.org/u/TiaG)\ **Post date:** [May 10, 2018, 10:56pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/54 "2018-05-10T22:56:16Z")
we sometimes see this but for us it tends to correspond with other types of variability during the day which suggests to us that the site is not working so well – lots of high spikes followed by very deep crashes later than you’d expect. ---
**Author:** ![ClaudnDaye](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/claudndaye/32/5_2.png) [@ClaudnDaye](https://forum.fudiabetes.org/u/ClaudnDaye)\ **Post date:** [May 10, 2018, 10:57pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/55 "2018-05-10T22:57:35Z")
If this were a problem we were having night and day I would understand it better. Or if we had been crashing during the day…we know that roller coastering begits more roller coastering and one low can produce more following that one. But the daytime BGs have been great for the most part. Just hoping whatever’s going on gets worked out soon. Can’t figure any type of testing that would help what’s going on. There isn’t any way DIA lasts 10 - 12 hours…we’re going to do some testing this weekend, but the only thing I can think of is DIA somehow, but just never heard of DIA lasting so long (into the very early hours of the morning. ---
**Author:** ![TiaG](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/tiag/32/594_2.png) [@TiaG](https://forum.fudiabetes.org/u/TiaG)\ **Post date:** [May 10, 2018, 10:59pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/56 "2018-05-10T22:59:32Z")
so it’s possible he’s still having random spurts of beta cell activity. Wish that were the case for Samson but it’s pretty clear that’s not the case. ---
**Author:** ![ClaudnDaye](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/claudndaye/32/5_2.png) [@ClaudnDaye](https://forum.fudiabetes.org/u/ClaudnDaye)\ **Post date:** [May 10, 2018, 11:03pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/57 "2018-05-10T23:03:17Z")
Or maybe, as @Eric suggested…it IS happening also during the day but because we’re awake and monitoring closely as always, we just catch them before they become problems. Definitely plan to test daytime AND nighttime over the weekend if possible. ---
**Author:** ![DeeM](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/deem/32/3597_2.png) [@DeeM](https://forum.fudiabetes.org/u/DeeM)\ **Post date:** [May 10, 2018, 11:52pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/58 "2018-05-10T23:52:24Z")
When people say ‘you must be a bad diabetic’ when they see I use a pump (or used to give myself multiple…daily… injections… when I was doing… MDI… GRRR). I always smile sweetly and launch in on my public service educational announcement of ‘Well, actually, it’s like this’ 😆 My usual PSA goes along this line… There aren’t ‘good’ diabetics or ‘bad’ diabetics. Various treatment styles and decisions do not indicate that any one diabetic is better than another. If you have any questions or want to listen, I’m happy to discuss my health / device / curiosities yadda yadda yadda with you. To my surprise most people do want to know more. And I am happy to ‘re-Neducate’ (any Simpson’s fans out there)? 🍺 ---
**Author:** ![Pianoplayer7008](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/pianoplayer7008/32/1507_2.png) [@Pianoplayer7008](https://forum.fudiabetes.org/u/Pianoplayer7008)\ **Post date:** [May 11, 2018, 3:22am UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/59 "2018-05-11T03:22:06Z")
> [@daisymae](#): > > (of course, i need to put a plug in for all of the amazing reasons i like to be a diabetic) : I’ve said it before, but again, I love your attitude towards diabetes, @daisymae! Thanks for adding in a different perspective. ---
**Author:** ![TravelingOn](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/travelingon/32/1583_2.png) [@TravelingOn](https://forum.fudiabetes.org/u/TravelingOn)\ **Post date:** [May 11, 2018, 12:17pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/60 "2018-05-11T12:17:18Z")
> [@T1Allison](#): > > so that I can sit down with a snack to up my calorie count for the day Random: have you thought of drinking your calories? Coffee/tea with heavy cream, protein shakes , etc? [Previous page](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997.md?page=2) [Next page](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997.md?page=4)