# What is the most frustrating thing about living with diabetes?

**URL:** <https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997>\
**Category:** Type 1 & LADA\
**Created:** [May 6, 2018, 12:53pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997 "2018-05-06T12:53:51Z")\
**Posts on this page:** 20\
**Page:** 2

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**Author:** ![CatLady](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/catlady/32/36_2.png) [@CatLady](https://forum.fudiabetes.org/u/CatLady)\
**Post date:** [May 8, 2018, 3:06pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/21 "2018-05-08T15:06:56Z")

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> [@Pianoplayer7008](#):
>
> Thank goodness for Afrezza. 🙂

I’ll second that sentiment! 😺

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**Author:** ![lh378](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/lh378/32/601_2.png) [@lh378](https://forum.fudiabetes.org/u/lh378)\
**Post date:** [May 8, 2018, 10:23pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/22 "2018-05-08T22:23:34Z")

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It’s a G4.

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**Author:** ![Thomas](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/thomas/32/1719_2.png) [@Thomas](https://forum.fudiabetes.org/u/Thomas)\
**Post date:** [May 8, 2018, 11:37pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/23 "2018-05-08T23:37:24Z")

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> [@Nickyghaleb](#):
>
> I also hate all the pricks in a day, but I’m not sure we’re talking about the same kind. :D. I don’t mind finger sticks at ALL.

ha ha ha - so funny as that was my first thought also.  
😄

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**Author:** ![Jen](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/jen/32/4777_2.png) [@Jen](https://forum.fudiabetes.org/u/Jen)\
**Post date:** [May 9, 2018, 2:54pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/24 "2018-05-09T14:54:04Z")

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I would say it’s the combination and interaction of diabetes and several other chronic health conditions. I don’t think diabetes alone would be that difficult, but combine it with several other things that require daily management, and often I just get health burnout.

Secondary to that, any time diabetes interrupts my sleep and/or I sleep through diabetes events I get annoyed. Today my pump ran out of insulin at 5:30 AM. I woke up at 7:00 AM to find my BG at 12.5 mmol/L when prior to the no insulin delivery my BG had been flatlining in range. Sometimes I wish my pancreas could just kick in for those couple hours so that I could keep on sleeping without consequences.

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**Author:** ![Nickyghaleb](https://avatars.discourse-cdn.com/v4/letter/n/5f8ce5/32.png) [@Nickyghaleb](https://forum.fudiabetes.org/u/Nickyghaleb)\
**Post date:** [May 9, 2018, 3:03pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/25 "2018-05-09T15:03:49Z")

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You just had more class than to make the joke. 😁 I’m working on self-sensoring… not very hard, but working.

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**Author:** ![Nickyghaleb](https://avatars.discourse-cdn.com/v4/letter/n/5f8ce5/32.png) [@Nickyghaleb](https://forum.fudiabetes.org/u/Nickyghaleb)\
**Post date:** [May 9, 2018, 3:06pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/26 "2018-05-09T15:06:47Z")

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Hang in there, Pianoplayer7008… before you know it those kids will be big enough to wait for you while you put your disease first. My 13 year old is ALMOST there. 😁

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**Author:** ![Ubas](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/ubas/32/3669_2.png) [@Ubas](https://forum.fudiabetes.org/u/Ubas)\
**Post date:** [May 9, 2018, 6:59pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/27 "2018-05-09T18:59:09Z")

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For me it is the fear of seizures. Hypo unawareness. Have one and you can’t drive for 6 months. If you survive.

The insulin that keeps you alive can kill you. But without it… DKA. Maybe some amputations.

I got out of hospital a week ago for DKA and they were so brutal with the needles my arm still hurts.

PS. If you still have a spare receiver I have a friend that could use it. I am in Australia so would pay for the shipping. Or if you have any dead G4 transmitters even better :).

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**Author:** ![lh378](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/lh378/32/601_2.png) [@lh378](https://forum.fudiabetes.org/u/lh378)\
**Post date:** [May 10, 2018, 11:58am UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/28 "2018-05-10T11:58:04Z")

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> [@Ubas](#):
>
> I am in Australia so would pay for the shipping.

Please pm me.

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**Author:** ![lh378](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/lh378/32/601_2.png) [@lh378](https://forum.fudiabetes.org/u/lh378)\
**Post date:** [May 10, 2018, 12:04pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/29 "2018-05-10T12:04:27Z")

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> [@Ubas](#):
>
> For me it is the fear of seizures. Hypo unawareness. Have one and you can’t drive for 6 months.

That was my original motivation to get the CGM. I was not aware if my BG were in the high 60’s. My only hypo episode thus far was one around 35 (I pre bolused for dinner, and became distracted with working on the computer - maybe FUD 🙂) Because I have the benefit of having learnt so much from FUD, I did not overtreat. My family was somewhat irritated/concerned. My son likely would have known what to do. I was sweating a little bit.

While pre bolusing is important for good BG management, it is not without its perils. When eating out, I wait until I have access to food (any carb) before bolusing. A lot of people split their bolus if dealing with possibly mystery food. Don’t we all love THAT one!

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**Author:** ![Ubas](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/ubas/32/3669_2.png) [@Ubas](https://forum.fudiabetes.org/u/Ubas)\
**Post date:** [May 10, 2018, 1:17pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/30 "2018-05-10T13:17:25Z")

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Yes. Amd my insulim sensitivity has a poor sense of humour. It changes from week to week so I am always on the back foot.

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**Author:** ![Ubas](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/ubas/32/3669_2.png) [@Ubas](https://forum.fudiabetes.org/u/Ubas)\
**Post date:** [May 10, 2018, 1:29pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/31 "2018-05-10T13:29:44Z")

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I am having a brain fail. Where is the PM function. Maybe my phone browser is not displaying the site properly

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**Author:** ![docslotnick](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/docslotnick/32/75_2.png) [@docslotnick](https://forum.fudiabetes.org/u/docslotnick)\
**Post date:** [May 10, 2018, 1:44pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/32 "2018-05-10T13:44:21Z")

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@Ubas Just tap on the user’s icon and you should see the option for PM.

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<div class="post-metadata">

**Author:** ![Ubas](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/ubas/32/3669_2.png) [@Ubas](https://forum.fudiabetes.org/u/Ubas)\
**Post date:** [May 10, 2018, 1:51pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/33 "2018-05-10T13:51:28Z")

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Yeah I can find users. But this is what I see

 ![41](https://canada1.discourse-cdn.com/flex030/uploads/fudiabetes/original/2X/9/906309f4b2466152033226f72f751c44479e79cf.png)

No message buttons and two browsers tried. ☹

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**Author:** ![Katers87](https://avatars.discourse-cdn.com/v4/letter/k/a9adbd/32.png) [@Katers87](https://forum.fudiabetes.org/u/Katers87)\
**Post date:** [May 10, 2018, 1:56pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/34 "2018-05-10T13:56:04Z")

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If you click on the User’s ID in this particular thread, you’ll see a send message option.

 ![image](https://canada1.discourse-cdn.com/flex030/uploads/fudiabetes/original/2X/5/57828053f815992882a0997271e4a32a70842e47.png)

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<div class="post-metadata">

**Author:** ![Ubas](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/ubas/32/3669_2.png) [@Ubas](https://forum.fudiabetes.org/u/Ubas)\
**Post date:** [May 10, 2018, 2:14pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/35 "2018-05-10T14:14:32Z")

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Thank you. That button is not there. I am not going mad. I will try the desktop version of the site.

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<div class="post-metadata">

**Author:** ![Ubas](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/ubas/32/3669_2.png) [@Ubas](https://forum.fudiabetes.org/u/Ubas)\
**Post date:** [May 10, 2018, 2:17pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/36 "2018-05-10T14:17:55Z")

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Nope. Seems I do not have PM access on my account. I need an admin ☹

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<div class="post-metadata">

**Author:** ![Eric](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/eric/32/9209_2.png) [@Eric](https://forum.fudiabetes.org/u/Eric)\
**Post date:** [May 10, 2018, 3:20pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/37 "2018-05-10T15:20:59Z")

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> [@Ubas](#):
>
> Seems I do not have PM access on my account.

I just sent you a test PM to see if you get it and can respond.

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<div class="post-metadata">

**Author:** ![CatLady](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/catlady/32/36_2.png) [@CatLady](https://forum.fudiabetes.org/u/CatLady)\
**Post date:** [May 10, 2018, 3:39pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/38 "2018-05-10T15:39:44Z")

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> [@lh378](#):
>
> When eating out, I wait until I have access to food (any carb) before bolusing. A lot of people split their bolus if dealing with possibly mystery food. Don’t we all love THAT one!

I am participating in some weekend yoga workshops—literally all day, all weekend—and face this problem each session. Lunch is potluck (usually vegan) and never at the same time. I am using Afrezza frequently and correcting as need be with my pump afterward. Sigh…

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<div class="post-metadata">

**Author:** ![Ubas](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/ubas/32/3669_2.png) [@Ubas](https://forum.fudiabetes.org/u/Ubas)\
**Post date:** [May 10, 2018, 3:49pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/39 "2018-05-10T15:49:03Z")

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Received and replied. But still no message button when clicking profiles

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**Author:** ![lh378](https://yyz2.discourse-cdn.com/flex030/user_avatar/forum.fudiabetes.org/lh378/32/601_2.png) [@lh378](https://forum.fudiabetes.org/u/lh378)\
**Post date:** [May 10, 2018, 4:11pm UTC](https://forum.fudiabetes.org/t/what-is-the-most-frustrating-thing-about-living-with-diabetes/3997/40 "2018-05-10T16:11:41Z")

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email/envelope

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