# What Are Some of The Things That Frustrate You Most About Being (or caring for) D
**URL:** https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574
**Category:** Emotional Health
**Created:** [August 13, 2017, 5:30pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574 "2017-08-13T17:30:01Z")
**Posts on this page:** 20
**Page:** 2
### Author:  [@Michel](https://forum.fudiabetes.org/u/Michel)
#### Post date: [August 13, 2017, 8:45pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/21 "2017-08-13T20:45:39Z")
> [@Millz](#):
>
> Like this one? š¼
That was REALLY funny! Itās perfect!
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### Author:  [@Thomas](https://forum.fudiabetes.org/u/Thomas)
#### Post date: [August 13, 2017, 8:49pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/22 "2017-08-13T20:49:20Z")
I stole a page link. No idea how many of these are valid in these forums.
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>
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### Author:  [@daisymae](https://forum.fudiabetes.org/u/daisymae)
#### Post date: [August 13, 2017, 9:49pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/23 "2017-08-13T21:49:58Z")
> [@cardamom](#):
>
> I ended up deciding Iād rather go to camps where the focus was on interests I had, rather than my disease.
this i can fully understand and respect. i think that perhaps b/c i did not get my D until collage years, i did not learn how (especially on an emotional level) to think of my D as just something else, for example, i wish i were 5ā9" tall, but i am only 5ā4". and thats just the way it is. accept it and move on. i would rather not be 5ā4" but i would not like to go to a camp where everybody there were the same height and that was all we talked about. š
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### Author:  [@daisymae](https://forum.fudiabetes.org/u/daisymae)
#### Post date: [August 13, 2017, 9:54pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/24 "2017-08-13T21:54:58Z")
> [@Chris](#):
>
> It truly is a week away for everyone.
this sounds wonderful. iām 53, but can i go there too? š
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### Author:  [@Thomas](https://forum.fudiabetes.org/u/Thomas)
#### Post date: [August 13, 2017, 10:40pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/25 "2017-08-13T22:40:41Z")
> [@daisymae](#):
>
> i think that perhaps b/c i did not get my D until collage years, i did not learn how (especially on an emotional level) to think of my D as just something else, for example, i wish i were 5ā9" tall, but i am only 5ā4". and thats just the way it is. accept it and move on.
Yeah - Completely agree.
At diagnosis when 8 years old there is only a vague memory of what was before and that memory is enough to know that ānowā is much much better than ābeforeā. DKA diagnosis is not pleasant but (always looking on the bright side for that half full glass) it leaves no room for misunderstanding that maybe all this is a mistake and not required.
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### Author:  [@daisymae](https://forum.fudiabetes.org/u/daisymae)
#### Post date: [August 13, 2017, 10:48pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/26 "2017-08-13T22:48:41Z")
this is very cool, but how did it end up on this thread? š
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### Author:  [@daisymae](https://forum.fudiabetes.org/u/daisymae)
#### Post date: [August 13, 2017, 10:52pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/27 "2017-08-13T22:52:28Z")
> [@Thomas](#):
>
> Yeah - Completely agree.
thx for your understanding. it really means a lot to me. no kidding.
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### Author:  [@Aaron](https://forum.fudiabetes.org/u/Aaron)
#### Post date: [August 14, 2017, 3:02am UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/28 "2017-08-14T03:02:45Z")
> [@CatLady](#):
>
> recalcitrant
What a great word to describe those highs!
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### Author:  [@Pianoplayer7008](https://forum.fudiabetes.org/u/Pianoplayer7008)
#### Post date: [August 16, 2017, 5:55pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/29 "2017-08-16T17:55:03Z")
The unpredictability, for sure - recently nailed dosing for a burger and fries, and the next time I tried the same exact place, split bolus, amount of food, time of day, etc, I went low. š
Also, being semi-newly diagnosed, discovering how much it impacts everyday things that I wasnāt anticipating - while vacationing this past weekend, I went swimming (for funā¦not even that strenuous), thinking nothing of it, first time Iāve been swimming while on insulin, when suddenly I started getting all my low symptoms: nausea, headache, fatigued, shaky, etc. Ugh! It ended what had been a very fun evening with my siblings. Actually thought of you, @daisymae, and your swimming thread when I realized what was happening.
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### Author:  [@Michel](https://forum.fudiabetes.org/u/Michel)
#### Post date: [August 16, 2017, 6:35pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/30 "2017-08-16T18:35:43Z")
> [@Pianoplayer7008](#):
>
> recently nailed dosing for a burger and fries,
Thatās pretty awesome though! Doesnāt it feel great when you nail it? ā
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### Author:  [@Chris](https://forum.fudiabetes.org/u/Chris)
#### Post date: [August 16, 2017, 6:51pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/31 "2017-08-16T18:51:55Z")
> [@Pianoplayer7008](#):
>
> Also, being semi-newly diagnosed, discovering how much it impacts everyday things that I wasnāt anticipating - while vacationing this past weekend, I went swimming
Pretty crazy how some activities your body isnāt adjusted to can absolutely crater your bg. The learning curve is steep. Thankfully it gets easier.
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### Author:  [@TiaG](https://forum.fudiabetes.org/u/TiaG)
#### Post date: [August 16, 2017, 7:01pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/32 "2017-08-16T19:01:58Z")
Also have to say that our sonās BG is way more predictable since heās been out of honeymoon. Being in honeymoon is good for some, but for others it really is pretty erratic.
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### Author:  [@Pianoplayer7008](https://forum.fudiabetes.org/u/Pianoplayer7008)
#### Post date: [August 16, 2017, 8:10pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/33 "2017-08-16T20:10:30Z")
> [@Michel](#):
>
> Doesnāt it feel great when you nail it?
Yes, especially something like that! Feels a bit like the insulin fairies sprinkled some magic over those fries or something. š
> [@TiaG](#):
>
> Being in honeymoon is good for some, but for others it really is pretty erratic.
Absolutely. Iāve told my family several times already - itās not that Iām looking forward to my honeymoon ending as far as disease progression, but I am very much looking forward to my honeymoon ending so I can maybe find things a bit more predictable (same goes with breastfeedingā¦).
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### Author:  [@TravelingOn](https://forum.fudiabetes.org/u/TravelingOn)
#### Post date: [September 7, 2017, 7:15am UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/34 "2017-09-07T07:15:05Z")
> [@docslotnick](#):
>
> I look at it very objectively. Itās a set of circumstances that are a part of my life, and of me. I simply must do a few things every day in order to not have it affect me adversely.
Wow! @docslotnick I really appreciate this. Often, when Iām reading everyoneās accounts here, I am struck by how lucky we are to be in touch with each other and how without EH having diabetes I wouldnāt probably have come across you folks. All of the experimental willingness (necessity?), the record-keeping, and the sticking-with-it inspires me.
While I wouldnāt wish diabetes on anyone, I feel like itās a unique bond that you all share. And when looked at logically, as youāve done here (and apparently for the last 46 years), it certainly feels more unlimited than it could otherwise.
But there are daysā¦where it doesnāt work right, BG is out of control, where all the experiments feel like a waste of time. When people donāt understand that a giant slice of cake will make someone I love feel like ā ā ā ā . And when I know _know_ **know** thereās a better way to do whatever it is (figure out ratios/run without disaster/eat/carb count/inject basal/track meals/apply the CGM/sleep thru the night/etc.) but I **canāt** figure it out. Thatās the hardest. Not being able to figure it out and knowing thereās a consequence. š„
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### Author:  [@Beacher](https://forum.fudiabetes.org/u/Beacher)
#### Post date: [September 7, 2017, 1:16pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/35 "2017-09-07T13:16:58Z")
> [@TravelingOn](#):
>
> but I canāt figure it out. Thatās the hardest. Not being able to figure it out and knowing thereās a consequence
Or you think you have it figured out, and you do the exact same thing the next day, and have the opposite result. I used to beat myself up constantly: āyou should know better by now, you should know what to do after all these years.ā Now I accept the frustrating, aggravating, infuriating UNPREDICTABILITY of my diabetes, and just get on with the day.
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### Author:  [@MM2](https://forum.fudiabetes.org/u/MM2)
#### Post date: [September 7, 2017, 1:27pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/36 "2017-09-07T13:27:24Z")
I feel same as beacher, maybe it just takes 30 years or more of D to get there.
Yesterday was one of those days I just had to move on. I had both one of the highest and lowest numbers in one day, than Iāve had in a long time. Not going to waste energy on why, today is a new day.
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### Author:  [@Jen](https://forum.fudiabetes.org/u/Jen)
#### Post date: [September 7, 2017, 2:55pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/37 "2017-09-07T14:55:18Z")
Yep, the unpredictability and constant adjusting. It gets so tiring. I try not to get frustrated anymore, but it still gets tiring. Especially because during those times my blood sugar is also high or low, which makes me not feel great physically on top of feeling tired about diabetes. Iāve had a period like that over the last two days. Highs and lows, no time spent in range. Adjusting settings to little avail. I think Iāve worked through it, but now my thing is waiting for the point at which this will happen again (whichāll probably be in a week). Exhausting.
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### Author:  [@TiaG](https://forum.fudiabetes.org/u/TiaG)
#### Post date: [September 7, 2017, 3:16pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/38 "2017-09-07T15:16:31Z")
This is one of the things I worry about for my son.
When I am dealing with crazy BG management, I may be exhausted or frustrated, but I have some respite ā my husband can take over care or my son is in daycare. I can let the control slip a little if I have to, and I personally am not physically feeling the consequences of that.
I canāt imagine what itās like to be the only one who can handle things, 24-7, no matter how crummy youāre feeling, how many nights youāve been up treating lows and highs, and how many other things you have to juggle in life.
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### Author:  [@MM2](https://forum.fudiabetes.org/u/MM2)
#### Post date: [September 7, 2017, 4:42pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/39 "2017-09-07T16:42:29Z")
Thatās EXACTLY why forums like this are so helpful. Even the most understanding, supportive friends and family can come close, but not truly understand.
And when they sort of get it, things can change and they have to learn all over again.
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### Author:  [@daisymae](https://forum.fudiabetes.org/u/daisymae)
#### Post date: [September 7, 2017, 5:01pm UTC](https://forum.fudiabetes.org/t/what-are-some-of-the-things-that-frustrate-you-most-about-being-or-caring-for-d/1574/40 "2017-09-07T17:01:10Z")
> [@MM2](#):
>
> And when they sort of get it, things can change and they have to learn all over again.
this is exactly what happens with my family and my husband. it drives me nuts. iāve had D for 30 + yrs, and they still dont get it.
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