Hi Dusty_19
My son was diagnosed about 6 months ago, so I cannot really offer any words of wisdom when it comes to treatment decisions as I’m really on the same side of the learning curve as you! (He, too, has a birthday coming up at the end of March! Happy Birthday to your boy!!)
Currently, we are on the strict “Don’t Die” MDI rules from the hospital, filing out paper logs that we submit for review until our appointment with his Endo
Oooph . . I sure hope the hospital staff didn’t refer to it as “Don’t Die” MDI rules . . . I don’t think I could have handled that! We too left the hospital with strict guidlines, ratios, correction factors, and directions to call every morning with his numbers. We did not leave with a CGM, but with a glucometer and insulin. In those first weeks I followed their instuctions closely, and really didn’t allow myself to think outside that box; the diagnosis alone and hospital stay (did I mention ours included life flight??) was more than I could bear at the time. But in short order, you’ll probably find yourself predicting their changes before you even call. By the end of those first weeks, I could usually predict, for instance, that they were going to change his breakfast ratio, or dinner ratio, etc. 9 times out of 10 I was right.
The REAL learning began when we got a CGM, about 3 months after diagnosis. It is a great tool and will be a game changer for you, for sure. Not pump yet for us (still MDI), but I’m pushing for that as well.
I really just want to say, if it offers any encouragement at all, that you are doing all the right things, even if it seems like you aren’t (at least that’s what I tell myself!!). I just joined this forum myself and was also blown away at the immediate response to my question and concerns. It was so encouraging, and if nothing else, it really made me feel like I had this “team” behind me.
Hang in there . . . there seems to be a lot of parents here that walked in those same steps you are now, myself included. The folks here have reassured me that in due time it will get easier and more routine, and I’m sure they’ll say the same things to you. Keep up the good (but oh so very hard) work!